Patient Empowerment Program: A Rare Disease Podcast
Duração total:
23 h 22 min
Knowledge is Power: Part 1
Patient Empowerment Program: A Rare Disease Podcast
35:19
Adopting a Rare Son with Paul Compton
Patient Empowerment Program: A Rare Disease Podcast
33:39
Ion Channel Mutations: The Complexities of Treatment
Patient Empowerment Program: A Rare Disease Podcast
30:16
Why We Dose Intrathecally
Patient Empowerment Program: A Rare Disease Podcast
29:18
Behind the ASO Design and Discovery with Konstantina Skourti-Stathaki, Ph.D.
Patient Empowerment Program: A Rare Disease Podcast
27:33
Best of the 2023 Nano-rare Patient Colloquium
Patient Empowerment Program: A Rare Disease Podcast
36:51
The Hurdles of Insuring Patients with Nano-rare Mutations with Alan Lotvin, M.D.
Patient Empowerment Program: A Rare Disease Podcast
50:51
Anna's Story of Hope and Help: FUS-ALS with Sonja Kämpfer and Dr. Neil Shneider
Patient Empowerment Program: A Rare Disease Podcast
43:06
Mostyn's Story: Mother's Day Special with Zoe Hummel
Patient Empowerment Program: A Rare Disease Podcast
50:06
Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D.
Patient Empowerment Program: A Rare Disease Podcast
48:53
Advanced Genetics Part 2
Patient Empowerment Program: A Rare Disease Podcast
25:52
Advanced Genetics Part 1
Patient Empowerment Program: A Rare Disease Podcast
30:13
Sharing Hope Through Storytelling & Connection with Shanna Tolbert
Patient Empowerment Program: A Rare Disease Podcast
43:08
Our Mission is Personal with Sarah Glass
Patient Empowerment Program: A Rare Disease Podcast
40:54
Q&A #2 with Patient Families
Patient Empowerment Program: A Rare Disease Podcast
45:45
Everybody Lives with Dan Doctoroff
Patient Empowerment Program: A Rare Disease Podcast
48:37
Best of the 2023 Nano-rare Patient Colloquium
Patient Empowerment Program: A Rare Disease Podcast
39:02
How to Think About "Risk" Part 2
Patient Empowerment Program: A Rare Disease Podcast
35:28
How to Think About "Risk" Part 1
Patient Empowerment Program: A Rare Disease Podcast
42:35
Inheriting Huntington's Disease and Aspiring to Prolong Lives with Jeff Carroll
Patient Empowerment Program: A Rare Disease Podcast
38:43
Living a Longer, Healthier, and More Fun Life with Chip Wilson
Patient Empowerment Program: A Rare Disease Podcast
60:16
Autopilot: The Autonomic Nervous System
Patient Empowerment Program: A Rare Disease Podcast
22:04
Better Health, Brighter Future for Rare with Dan Curran
Patient Empowerment Program: A Rare Disease Podcast
29:52
Sneak Peek of the 2023 Nano-rare Patient Colloquium
Patient Empowerment Program: A Rare Disease Podcast
36:04
Liver: Diseases
Patient Empowerment Program: A Rare Disease Podcast
14:40
Liver: The Master Chemist
Patient Empowerment Program: A Rare Disease Podcast
20:23
Liver: Metabolic Magic
Patient Empowerment Program: A Rare Disease Podcast
30:00
Bottling Hope
Patient Empowerment Program: A Rare Disease Podcast
30:23
Pursuing Diagnoses and Sequencing
Patient Empowerment Program: A Rare Disease Podcast
42:26
Lungs: Heavy Breathing — Diseases and Obstructions
Patient Empowerment Program: A Rare Disease Podcast
16:02
Lungs: Defending Airways
Patient Empowerment Program: A Rare Disease Podcast
26:55
One Year Anniversary: It Takes a Rare Community
Patient Empowerment Program: A Rare Disease Podcast
45:43
Coming Together for the Nano-rare Patient
Patient Empowerment Program: A Rare Disease Podcast
31:53
Q&A #1 with Patient Families
Patient Empowerment Program: A Rare Disease Podcast
51:24
Bits and Bytes Help Streamline Bench to Bedside
Patient Empowerment Program: A Rare Disease Podcast
21:41
Fostering Collaboration to Fight ALS
Patient Empowerment Program: A Rare Disease Podcast
31:53
The Energy of Life
Patient Empowerment Program: A Rare Disease Podcast
25:02
Everybody Lives
Patient Empowerment Program: A Rare Disease Podcast
47:08
Cardiovascular System Part 4B: (The Spigot) Kidney Diseases
Patient Empowerment Program: A Rare Disease Podcast
22:23
Cardiovascular System Part 4A: (The Spigot) Kidney Functions
Patient Empowerment Program: A Rare Disease Podcast
20:23
