Hallgasd meg ezt a podcastot: Rare Connection

NEDAMSS With Liz From Florida	Rare Connection	38:26
Global Drug Access For Rare Diseases With Aayush Goyal of MedsPartner	Rare Connection	37:52
Palliative care with Anne Front LMFT from California	Rare Connection	41:22
TNRC6B With Keyundra From Arkansas	Rare Connection	59:12
Idiopathic Intercranial Hypertnsion with Stephanie From Maryland	Rare Connection	46:47
CLCN6 With Paul From California	Rare Connection	54:40
Sarcoidosis With Regina From Indiana	Rare Connection	49:32
Glutaric Acidemia 1 with Serena From New Zealand 2nd Anniversary episode	Rare Connection	78:06
Ank 3 With Tami from Kansas	Rare Connection	32:00
Mental Health and Rare Disase with Frank From New York	Rare Connection	49:07
Orphan Disease of HLA-B27 With Brenda From Florida	Rare Connection	53:52
Neuromyoitis Optica with Nicki From New York	Rare Connection	96:49
Familial Adenomatous Polyposis With Jenny From Oklahoma	Rare Connection	40:10
From Researcher to Lymphocytic Colitis Patient Ben From South Dakota	Rare Connection	89:05
Unnamed Chromosomal Disorder With Melissa From Minnesota	Rare Connection	43:56
RareGen's Impact: Khartik Uppalapati on Science, Policy, and Patient Empowerment	Rare Connection	37:12
Cerebral Cavernous Malformation With Elizabeth From Oregon and Allison from DC	Rare Connection	139:52
Jeff McDonald CEO Kythera Labs	Rare Connection	63:35
Sjogren's Syndrome with Mimi From Florida	Rare Connection	84:05
Alpha 1 Atrypsijn Deficiency With Mr,. Ohh From Ohio	Rare Connection	71:43
Hemochromatosis With Michael from Guatemala	Rare Connection	124:22
Acromegaly With Risa From Colorado	Rare Connection	64:54
PKU With Danielle From Maryland	Rare Connection	41:53
Superficial Siderosis With Rori From Texas	Rare Connection	73:08
Male Breast Cancer With Phil From The UK	Rare Connection	29:12
Homocystinuria With Erika from Florida	Rare Connection	48:14
Homocystinuria Awareness Month: Classical Homocystinuria with Denise From Ohio	Rare Connection	44:25
Homocystinuria Awareness Month: Classical Homocystinuria with Anna from Uruguay	Rare Connection	42:18
Chronic Intestinal Pseudo Obstruction With Briana From Ohio	Rare Connection	73:12
Dyskeratosis Congenita with Damien from Arizona improved sound from live	Rare Connection	73:28
Congenital Muscular Dystrophy Newborn Screening Awareness Month	Rare Connection	20:45
Hemophilia with Patrick James Lynch From Believe limited	Rare Connection	40:38
Long Chain Hydrocxy Coenzyme A Dehydrogenase Deficiency (LCHAD)	Rare Connection	39:08
Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon	Rare Connection	29:46
Menkes Disease With Daniel DeFabio From New York	Rare Connection	60:12
Pura Syndrome With Melissa From Washington	Rare Connection	38:41
Severe Methylene Tetrahydro Folate Reductase (MTHFR) With Grace from Florida	Rare Connection	57:19
High Functioning Autism (Aspburger's Syndrome) With Kadin From Ohio	Rare Connection	17:26
Rare Connection Episode 11: Acoustic Neuroma with Shari from California	Rare Connection	46:52
Rare Connection Episode 10: AI Assist	Rare Connection	30:31

NEDAMSS With Liz From Florida

Rare Connection

38:26

Global Drug Access For Rare Diseases With Aayush Goyal of MedsPartner

Rare Connection

37:52

Palliative care with Anne Front LMFT from California

Rare Connection

41:22

TNRC6B With Keyundra From Arkansas

Rare Connection

59:12