Rare Connection
合計時間:
35 h 02 min
Familial Adenomatous Polyposis With Jenny From Oklahoma
Rare Connection
40:10
From Researcher to Lymphocytic Colitis Patient Ben From South Dakota
Rare Connection
89:05
Unnamed Chromosomal Disorder With Melissa From Minnesota
Rare Connection
43:56
RareGen's Impact: Khartik Uppalapati on Science, Policy, and Patient Empowerment
Rare Connection
37:12
Cerebral Cavernous Malformation With Elizabeth From Oregon and Allison from DC
Rare Connection
139:52
Jeff McDonald CEO Kythera Labs
Rare Connection
63:35
Sjogren's Syndrome with Mimi From Florida
Rare Connection
84:05
Alpha 1 Atrypsijn Deficiency With Mr,. Ohh From Ohio
Rare Connection
71:43
Hemochromatosis With Michael from Guatemala
Rare Connection
124:22
Acromegaly With Risa From Colorado
Rare Connection
64:54
PKU With Danielle From Maryland
Rare Connection
41:53
Superficial Siderosis With Rori From Texas
Rare Connection
73:08
Male Breast Cancer With Phil From The UK
Rare Connection
29:12
Homocystinuria With Erika from Florida
Rare Connection
48:14
Homocystinuria Awareness Month: Classical Homocystinuria with Denise From Ohio
Rare Connection
44:25
Homocystinuria Awareness Month: Classical Homocystinuria with Anna from Uruguay
Rare Connection
42:18
Chronic Intestinal Pseudo Obstruction With Briana From Ohio
Rare Connection
73:12
Dyskeratosis Congenita with Damien from Arizona improved sound from live
Rare Connection
73:28
Congenital Muscular Dystrophy Newborn Screening Awareness Month
Rare Connection
20:45
Hemophilia with Patrick James Lynch From Believe limited
Rare Connection
40:38
Long Chain Hydrocxy Coenzyme A Dehydrogenase Deficiency (LCHAD)
Rare Connection
39:08
Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon
Rare Connection
29:46
Menkes Disease With Daniel DeFabio From New York
Rare Connection
60:12
Pura Syndrome With Melissa From Washington
Rare Connection
38:41
Severe Methylene Tetrahydro Folate Reductase (MTHFR) With Grace from Florida
Rare Connection
57:19
High Functioning Autism (Aspburger's Syndrome) With Kadin From Ohio
Rare Connection
17:26
Rare Connection Episode 11: Acoustic Neuroma with Shari from California
Rare Connection
46:52
Rare Connection Episode 10: AI Assist
Rare Connection
30:31
Rare Connection Episode 9: Malan Syndrome with sky from Oklahoma
Rare Connection
30:21
Rare Connection Episode 8: Mast Cell Activation Syndrome & Growth Hormone Deficiency
Rare Connection
62:59
Primary Sclerosing Cholangitis,& Trigeminal Neuralgia
Rare Connection
65:51
Rare Connection Episode 6: Calciphylaxis and Multiple Endocrine Neoplasia Type 1
Rare Connection
93:06
Rare Connection: Episode 5: Congenital Central Hypoventilation Syndrome (CCHS)
Rare Connection
29:12
Rare Connection Episode 4: Pyruvate Dehydogenase Defiecency (PDCD)
Rare Connection
35:44
Rare Connection Episode 3: GastroParesis and POTS
Rare Connection
24:26
Rare Connection Episode 2 Wendy Psoriatic Arthritis
Rare Connection
46:46
Rare Connection Episode 1: Homocystinuria (HCU) Jenifer from Cananda
Rare Connection
23:14
Nutrition Equity Episode 13: Diabetes Awareness month With Jessica
Rare Connection
43:22
Nutrition Equity Episode 12: HCU Awareness Month Cobalamin G Heather Parent
Rare Connection
60:18
Nutrition Equity Episode 11: HCU Awareness Month Bharat Assistant Taste Connections
Rare Connection
21:34