Global Hemophilia Report

Общая длительность:31 h 09 min
The Research Ecosystem Behind Hemophilia Breakthroughs: Funding, Mentorship, and Collaboration
Global Hemophilia Report
55:51
WFH 2026: Spotlight on Humanitarian Aid
Global Hemophilia Report
43:59
Rebalancing Agents and Other Available Treatment Options
Global Hemophilia Report
40:44
The Future of Comprehensive Care
Global Hemophilia Report
45:59
40 Years in Hemophilia
Global Hemophilia Report
49:48
There's Nothing New for Me in the Pipeline (Clinical Trials & Patient Participation)
Global Hemophilia Report
35:02
Yes, Women Have Hemophilia: Knowledge Gaps, Diagnostic Delays & the Fight for Equity
Global Hemophilia Report
37:02
Hemophilia in the Real World: Patient Engagement in Registries & Data Collection
Global Hemophilia Report
34:14
I'm Fine. This Is Normal. Old Faithful Works for Me! Mental Health Challenges to Progress
Global Hemophilia Report
42:12
Maybe We're Not on the Same Page: Shared Decision Making in Hemophilia Care
Global Hemophilia Report
37:38
Are We Measuring the Right Stuff?
Global Hemophilia Report
32:19
Health Literacy is Health Equity, and It Matters
Global Hemophilia Report
39:15
Global Advocacy at the Organizational Level
Global Hemophilia Report
35:04
What We've Learned - Season 3
Global Hemophilia Report
52:35
The Future of the Comprehensive Care Model
Global Hemophilia Report
71:46
Chapters & Grassroots Advocacy
Global Hemophilia Report
52:25
The Evolving Landscape of Novel Therapies for Hemophilia: What's Here & What's Coming?
Global Hemophilia Report
69:02
Understanding & Preventing FVIII Inhibitors : An Enduring HA Research Priority
Global Hemophilia Report
68:45
Lived Experience Experts: Taking Their Rightful Place at the Research Table
Global Hemophilia Report
50:22
Caregivers and Novel Therapies - Alleviating or Replacing Concerns?
Global Hemophilia Report
40:03
World Hemophilia Day
Global Hemophilia Report
25:39
Translating Patient-Reported Clinical Outcomes into Patient-Informed Clinical Research Outcomes
Global Hemophilia Report
50:32
Understanding Factor VIII & IX - In Coagulation and Beyond - How Much Are We Still Missing?
Global Hemophilia Report
48:41
Hemophilia Gene Therapy Redux – The End of the Beginning?
Global Hemophilia Report
60:32
PTSD & Hemophilia
Global Hemophilia Report
54:40
The US National Research Blueprint (NRB)
Global Hemophilia Report
59:34
LGBTQ+ Health- Addressing Specific Needs in Comprehensive Hemophilia Care
Global Hemophilia Report
57:25
Sexual Health- An Unaddressed Need in Comprehensive Hemophilia Care
Global Hemophilia Report
51:34
Mild Hemophilia A: A Misnomer?
Global Hemophilia Report
52:21
Telemedicine for the Care of Hemophilia: What Do We Gain And What Do We Lose?
Global Hemophilia Report
48:17
Social Drivers of Health in the Bleeding Disorders Community
Global Hemophilia Report
42:31
Hemophilia Camps - Evidence of Benefit
Global Hemophilia Report
47:01
Sports, Fitness & Hemophilia - Evidence-based perspectives
Global Hemophilia Report
46:19
Barriers to Research in Hemophilia
Global Hemophilia Report
42:06
Aging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity - Part 2
Global Hemophilia Report
44:23
Aging with Hemophilia: The Triumphs, Burdens, and Uncertainties of Longevity
Global Hemophilia Report
53:37
Where does research go from here? S1 Finale!
Global Hemophilia Report
28:34
Pain in Hemophilia - Part 2 - Exercise, Medication & Investigations
Global Hemophilia Report
41:29
Pain in Hemophilia - Part 1 - Prevalence, Mechanisms, and Assessment
Global Hemophilia Report
39:33
Hemophilia B & the story of Tsarevich Alexei - Part 2
Global Hemophilia Report
40:28