Show cover of Help and Hope Happen Here

Help and Hope Happen Here

This Podcast is going to be about Pediatric Cancer and the need to keep the awareness of this terrible disease in the public eye. My plan is to be able to interview a wide spectrum of people who all have a passion and a stake in finding a way to make the lives of these Pediatric Cancer Patients easier. I will interview oncologists, nurses, recovered patients, parents who have had to oversee their children's cancer fight, heads of Pediatric Cancer Foundations and Organizations , and others who would like to use this forum to advocate for these children.

Tracks

Mariah Forster Olson and Mary Beth Collins will talk about the critical subject of SURVIVORSHIP on today's podcast and will discuss the toolkit for survivors of Pediatric Cancer and their families to
For the past 3 years Mariah Forster Olson and Mary Beth Collins have been working on a Toolkit to help Pediatric Cancer survivors and their families try and navigate through the period when they have gone past the 5 year mark since their cancer diagnosis, but have many issues to conquer both physically and mentally because of what they went through during their cancer experiences. This toolkit is now available and has already helped many patients and their families who have entered the Survivorship phase. Mariah and Mary Beth are both members of the very important and successful Non-Profit known as the Coalition Against Childhood Cancer or CAC2.
101:47 4/8/24
Tabitha Odom will talk about her daughter Sailor who was diagnosed with B Cell Acute Lymphoblastic Leukemia in November of 2022 and is now about halfway through her final maintenance treatment protoco
Tabitha Odom thought that her 2 year old daughter Sailor might have the flu when she brought her to a Walk In Clinic in November of 2022 as she had not been feeling well. Later that night Tabitha became worried when she received a phone call at 9:00 PM and said that Sailor needed  to go to a hospital emergency room. After that she was sent to  UTMB Hospital in Galveston Texas where Tabitha was told that Sailor had B Cell Acute Lymphoblastic Leukemia. Tabitha will talk about Sailor's successful treatment protocol in which she is expected to complete her maintenance program in January of 2025. 
50:15 4/1/24
Vickie Stevens and Don McCarthy will talk about their son Rio and his current battle with Stage 4 Neuroblastoma which he was diagnosed with in August of 2023
In April of 2023 Vickie Stevens and Don McCarthy's little son Rio was experiencing a loss of appetite, limping instead of walking, and losing energy. After a stay at a local hospital did not solve the question of what was wrong with Rio, he was transferred to a large hospital in London and was finally diagnosed with Stage 4 Neuroblastoma. Rio is now into his 8th month of treatment  and the hope is that he will at some point be able to travel to Memorial Sloan Kettering in New York to take a drug that has proven to be highly successful in treating Rio's form of Neuroblastoma . Vickie and Don will also talk about the organization Solving Kids Cancer which has proven to be very helpful for their family and many others in England.  www.solvingkidscancer.org.uk/children/rio+1
53:55 3/28/24
Abby Wagle met Ella Bresee when she was 12 years old in 2019. They quickly became best friends and then in 2021, Ella was diagnosed with Medulloblastoma. Abby will talk about losing Ella to this disea
Abby Wagle and Ella Bresee met in 2019 when they played competitive basketball against each other. They quickly became best friends and then in 2021, Ella was diagnosed with the Pediatric Brain Cancer Medulloblastoma. Abby is now a sophomore in high school and will talk about the close friendship that she and Ella had, and how difficult it was when Ella passed away in September of 2022. Abby will talk about the many ways that she has honored her friend since then and will continue to honor her in the years to come. 
44:42 3/21/24
Kelly Stevens will talk about her son Charlie and his fight against Acute Myeloid Leukemia, which led to his very unfortunate passing on January 27th of 2021, just 2 days after his 3rd birthday.
After little Charlie Stevens was taken to his doctor after he developed a lesion in his right eye, it became apparent that he had too many white blood cells, but an X Ray and ultrasound showed him to be healthy in the early days of 2020. Just six weeks later Charlie was diagnosed with Acute Myeloid Leukemia. A very aggressive treatment protocol led to his remission that year but just before Christmas Charlie relapsed and he passed away on January 27th, of 2021, just 2 days after his 3rd birthday. Charlie's mother Kelly will talk about her beloved son, and how she has become an activist in her native home of Adelaide Australia to help other AML and Pediatric Cancer patients and their families. 
74:11 3/18/24
Brian Burkhardt will talk about his son Oliver who was diagnosed during Covid with Acute Lymphoblastic Leukemia, and the Non-Profit called the Oliver Patch Project that he started by accident and is i
Brian Burkhardt and his family left their home in Miami and went to the Florida Keys during Spring break in early in 2020 where they had to isolate because of Covid. Two days after they returned home his son Oliver was having trouble breathing which sounded like a Covid issue,  but turned out to be the Pediatric Blood Cancer Acute Lymphoblastic Leukemia. Brian will talk about this diagnosis, Oliver's successful treatment , and the more than creative Non-Profit called the Oliver Patch Project. which Brian and his wife Trish started in Oliver's honor. 
71:39 3/14/24
Emily Gordon and her daughter Vara James will talk about Vara's battle with Wilms Tumor which is a kidney cancer, her recovery, and the Rock Cancer program that they helped start .
When Vara James was 9 years old in 2016 she was diagnosed with the Kidney Cancer Wilms Tumor. Now 17 years old, Vara has been cancer free since February of 2018 and has many options to look at as she is able to live as normal of a life as possible. Vara and her mother Emily Gordon will talk about these past 8 years which include helping to start the Rock Cancer program along with Neuro Oncologist Dr. Carl Koschmann,  which gives Pediatric Cancer patients the opportunity to gain confidence and a sense of accomplishment by learning to Rock Climb. 
63:18 3/10/24
Kim Denice will talk about being a Pediatric Cancer survivor of Hodgkins Lymphoma which was diagnosed when she was a high school senior in 2013, and her current work at the Leukemia and Lymphoma Socie
It took 5 years after waking up each day feeling tired and sick, but Kim Denice was finally diagnosed with Hodgkins Lymphoma as a senior in high school in 2013. Kim will talk about the struggles that she had while she was in treatment and even to this day, as she has been cancer free for over 10 years. Kim will also talk about her involvement in the Leukemia and Lymphoma Society and the fact that she is able to live her life in the best manner possible. 
56:32 3/7/24
Christen Gray will talk about her son Finn who was diagnosed with Ewings Sarcoma when he was 5 years old in 2018 and passed away on January 21st of 2020. Christen will also discuss her Finn's Fighter'
Christen Gray's 5 year old son Finn complained of back pain in the day's before he was to go to kindergarten in 2018. As Christen drove Finn to school for his first day, his back was hurting so much that he had trouble sitting in his car seat. Just a few days later Finn was diagnosed with the Pediatric Bone Cancer Ewings Sarcoma. Christen will talk about Finn's all too short life which ended on January 21st of 2020, and the non- profit Finn's Fighters which her family started in 2019 and its mission, which is to raise awareness for the cause of Pediatric Cancer and to help Tampa Bay area families who are going through their own cancer issues with their children. 
57:55 3/4/24
Bryan and Shauna Smith will talk about their son Oliver who passed away from Ewings Sarcoma one day after his 12th birthday in 2019, and the Ollie Bots Project that was started in his honor.
When 10 year old Oliver Smith was trying out for his under 11 hockey team in the fall of 2016 his father noticed that Oliver was not as agile, fast, and flexible as he normally was. He also complained of pain in his groin area. Other symptoms arrived and in early 2017, Oliver was diagnosed with Ewings Sarcoma which was already at Stage 4. Oliver fought his battle for nearly 2 and half years before passing away on June 27th of 2019, just 1 day after his 12th birthday. Oliver's parents Bryan and Shauna will talk about their beloved son and the Ollie Bots Project that they started in his honor, which is helping to fund research for Ewings Sarcoma and to help local families fighting Pediatric Cancer. 
74:17 2/28/24
Shauna Falvey will talk about her 6 year old daughter Mia who was diagnosed with Medulloblastoma in the summer of 2022 and has been dealing with one obstacle after another during her 20 month treatmen
It took a confirmation from St. Jude Children's Research Hospital to finally confirm that 6 year old Mia Falvey had Medulloblastoma after waiting for an official diagnosis for more than 30 days. Since the summer of 2022 Mia has been under treatment for this most common form of Pediatric Brain cancer and is waiting for an upcoming MRI which will tell the doctors what her next treatment protocol will look like. 
45:30 2/26/24
Eliy Simmer was diagnosed with Ewings Sarcoma on May 12th of 2021 and will talk about her journey which began when she was a 14 year old High School freshman. Eliy is now a High School Senior and her
Bothered by pain in her shoulder blade since the fall of 2020 while she was a member of her high school volleyball team, 14 year old Eliy Simmer saw many doctors but did not get diagnosed with Ewings Sarcoma until May 12th of 2021. Eliy spent the rest of that year undergoing treatment for this form of pediatric cancer and in January of 2022 her treatment protocol successfully ended. Now a high school senior, Eliy is looking forward to the next steps in her life in which she has a variety of choices to look at. Along with these choices, Eliy will continue her Eliy's Sunflowers Non-Profit, which she started to help fellow teenage cancer patients have as much comfort as they can while trying to get through their own pediatric cancer battles. 
46:20 2/22/24
Donna DeSousa Schmidt will talk about her daughter Maggie who was diagnosed with Malignant Rhabdoid Tumors when she was 16 years old in 2016 and passed away on June 1st of 2017, just 6 weeks after her
Maggie Schmidt was a 16 year old seemingly healthy teenager when she competed in a Tough Mudder race in the summer of 2016. 18 days after that, Maggie started experiencing symptoms that would lead to a diagnosis of Malignant Rhabdoid Tumors in October of that year.  As she tried to overcome whatever setbacks came her way, Maggie had one bad break after another and passed away from this form of Pediatric Cancer on June 1st of 2017, just 6 weeks after her 17th birthday. Her mom Donna will talk about her beloved daughter and will also discuss Maggies Mission, a Non-Profit that  her family started just 4 months after her passing and means so much to Donna. 
52:08 2/19/24
Parker Watson is a 10 year old survivor of Acute Lymphoblastic Leukemia and will talk along with Noah Janfaza about Team Impact and Parker's association with the Harvard Men's Hockey Team because of
Parker Watson was diagnosed with Acute Lymphoblastic Leukemia when he was 4 1/2 years old and is now a Pediatric Cancer survivor. His parents Michelle and Mike found out about Team Impact and Parker was connected with the Harvard Men's Hockey Team, has been their Team Impact Representative since January 31st of 2023. Noah Janfaza in his 3rd year of being the Student Manager for the Harvard Hockey team and is also the Liason between Team Impact and Harvard. Parker and Noah will both talk about the great experiences they have had since Parker became a full member of the Harvard team. 
37:03 2/15/24
Michelle Watson will talk about Team Impact who connects Kids who have serious illnesses or disabilities with College Sports teams, as they did with her son Parker who is a Pediatric Cancer survivor.
Michelle Watson's 10 year old son Parker was diagnosed with Acute Lymphoblastic Leukemia when he was 4 1/2 years old in 2017. Now 10 years old, Parker was connected through Team Impact with the Harvard Men's Hockey team and he has been an official Team Member of the Crimson since January 31st of 2023. Michelle talks about how much Team Impact has meant to her family and how much joy that Parker has felt being with a group of college athletes that take their role of accepting Parker very seriously. 
38:02 2/11/24
Amanda Cruz will talk about her son Zioniah, who passed away on September 19th of 2023 after a tortuous battle with Lymphoma in which nothing went right for him during his treatment
Amanda Cruz has the difficult task in explaining all the things that went wrong during her son Zioniah's treatment for Lymphoma which started in late 2022 and lasted until his passing on September 19th of 2023. Amanda will talk about the myriad of mistakes that were made medically which led to Zioniah unnecessarily being in a great deal of pain during much of his treatment protocol. Amanda will also discuss the lack of support that she has received since Zioniah passed away as she is not even five months into her grieving period.
63:09 2/7/24
Dominique Epthorp's son Ashton was diagnosed with T Cell Acute Lymphoblastic Leukemia after his original diagnosis of A Typical Pneumonia in 2022 and is now 8 months into his Maintenance program.
After an original diagnosis of A Typical Pneumonia after a persistent cough sent Dominique Epthorp's son Ashton to see his doctor in the late summer of 2022, a recheck of his symptoms after Ashton had a shortage of breath after running, showed that his real diagnosis was T Cell Acute Lymphoblastic Leukemia. Ashton has been in his Maintenance program for 8 months and is looking forward to ringing the bell at his hospital, signifying No Evidence of Disease on September  9th. 
56:09 2/5/24
Nora Schmidt will talk about her daughter Maddie who went to her eye doctor for a regular appointment which went well, but the very next day she developed an issue with her right eye which led to her
Nora Schmidt noticed that her daughter Maddie's right eye was crossing inward, one day after she had gone to her eye doctor for a simple eye appointment in which everything looked fine. This situation, which according to her Eye Doctor and a Pediatric Opthamologist could have been a common condition known as Strabismus, but  instead turned out to be DIPG. Nora will talk about Maddie's journey which lasted for just over 10 months before her passing from this Pediatric Brain Cancer on December 31st of 2022. 
56:24 2/1/24
Amber Friesen will talk about her daughter Taylor and her fight with Aveolar Rhabdomyosarcoma which was diagnosed just before the Pandemic began in 2020 and very sadly ended with her passing in Decemb
Amber Friesen was told by her soon to be 10 year old daughter Taylor that she had what looked to be either a lump or a cyst on her right hand. Unfortunately what this turned out to be was the Pediatric Cancer Aveloar Rhabdomyosarcoma. On today's podcast Amber will talk about her beloved daughter who was diagnosed with this cancer in early 2020 and passed away in December of 2021. Amber will also talk about the non-profit TAYLOR'S DREAM that she started to honor the life of Taylor.
45:16 1/28/24
Dr. Daniel Morgenstern will talk about his expert knowledge on Neuroblastoma and his work in Drug Development for Pediatric Cancer patients on today's podcast.
Dr. Daniel Morgenstern grew up and was educated in England and went to the University of Cambridge as part of his medical education. In 2016 he moved to Toronto where he became a Staff Oncologist at Sick Kids Hospital in Toronto with his expertise being in the Pediatric Cancer Neuroblastoma. While working diligently on this cancer, Dr. Morgenstern is also involved in drug development in trying to find new novel therapies that will help Pediatric Cancer patients who need new medicines which are less toxic as quickly as possible. 
51:55 1/25/24
Marta Blanco will talk about her daughter Sofia who was diagnosed with Non Hodgkins Lymphoma when she was 4 years old in 2003, but passed away just after her 13th birthday in April of 2012 from the sh
Having a side effect or long term effect after surviving a battle with Pediatric Cancer is not at all surprising. On today's podcast Marta Blanco will talk about her daughter Sofia, who after being diagnosed with Non Hodgkins Lymphoma in 2003 when she was 4 years old,  suffered from Heart Failure during her treatment for this form of Pediatric Cancer. Although Sofia had recovered from her Lymphoma battle and managed to have a good quality of life for a number of years, she passed away from this Heart Failure side effect in April of 2012, just one month after her 13th birthday. 
55:30 1/22/24
Kurt Myers and his wife PJ will talk about their daughter Ailani and the High Risk- Poor Prognosis battle with Acute Lymphoblastic Leukemia which began when their daughter was 2 years old in 2019 and
Kurt Myers and his wife PJ's daughter Ailani was originally diagnosed with Acute Lymphoblastic Leukemia when she was 2 years old in 2019. Because of a genetic mutation, her diagnosis was changed several weeks into her treatment to ALL which was determined to be high risk with a poor prognosis. Kurt and PJ will talk about what Ailani has had to go through including many relapses, 2 Bone Marrow Transplants, and treatment at some of the leading Pediatric Cancer hospitals in the United States. As 2024 begins, Ailani has suffered another relapse but is living the best life that she possibly can. 
73:16 1/18/24
Ryan Callahan was a star player in the National Hockey League for over a decade and his wife Kyla will discuss with great passion their Ryan Callahan Foundation which gives so much to Pediatric Cancer
Ryan Callahan began his outstanding National Hockey League career with the New York Rangers during the 2006-2007 season, and during the 2014 season went to the Tampa Bay Lightning. While in Tampa, he and his wife Kyla started the Ryan Callahan Foundation to help Pediatric Cancer patients and their families get as much enjoyment during their cancer journey's as possible. Kyla will talk about their Foundation with incredible passion on today's podcast. 
71:57 1/15/24
Kathy and Joe Arabia will talk about their daughter Anna who passed away from the Pediatric Brain Cancer Gliomatosis Cerebri in 2013 and will discuss their AYJ fund that they established in honor of A
Before walking upstairs in her home in 2009, 13 year old Anna Yan Ji slipped and fell and afterwards, said that she felt funny. Shortly thereafter it was discovered that Anna had suffered a seizure and this seizure led to a diagnosis of the very rare Pediatric Brian Cancer, Gliomatosis Cerebri . Anna's parents, Kathy and Joe Arabia will talk about Anna and her cancer diagnosis, which lasted for 3  1/2 years before her eventual passing. They will also talk about their AYJ Fund which will be celebrating its 10th anniversary on February 10th, and is doing great work to fund groundbreaking research to help future children and adolescents who are diagnosed with this form of Brain Cancer. 
69:52 1/11/24
Elena Bliss will talk about the very difficult battle that her daughter Brittney fought from May of 2022 until June of 2023 before passing away from Embryonal Rhabdomyosarcoma just after her 5th birth
Brittney Bliss was diagnosed with Embryonal Rhabdomyosarcoma just after her 4th birthday in 2022. Her mother Elena will talk about the 13 month battle in which her beloved daughter never really caught a break, despite the fact that she was treated at some of the leading Pediatric Cancer hospitals in the country including Boston Children's Hospital and Children's Hospital of Philadelphia. Brittney passed away from this form of Pediatric Cancer on June 6th of 2023, just 10 days after her 5th birthday. 
69:59 1/8/24
Lysi Kinyon and Sara Ross McHenry are both long term survivors of Neuroblastoma and will talk about their experiences for more than 20 years of trying to deal with the difficult long term side effects
Lysi Kinyon was diagnosed with Neuroblastoma before she was even born and Sarah Ross McHenry was diagnosed with this form of Pediatric Cancer when she was 8 years old. Lysi and Sarah will talk about the many long term side effects that both of them have had to experience for more than 20 years and how, even with all of their difficulties, they have been able to live their best lives possible, which includes giving back to others. 
47:08 1/4/24
Martine Kalbhenn will talk about her son Jackson who was diagnosed at 5 years old in early August of 2023 with the Bone Cancer Ewings Sarcoma and is successfully going through his treatment at the Bar
Martine Kalbhenn was 3000 miles away at her family's home in Kennebunk, Maine when her 5 year old son Jackson tripped and fell while running and hurt his leg badly while visiting his Grandmother in California. Martine received a phone call from her husband Kyle and made plans to immediately travel out west. Jackson's fall was far from normal, as he was diagnosed with the Bone Cancer Ewings Sarcoma. Martine will talk about that time period  in which his fall occurred in late July, and how he is doing now during his treatment protocol, taking place at the Barbara Bush Children's Hospital, located at the Maine Medical Center in Portland, Maine. 
47:21 1/1/24
Jen Gaspar will talk about her son Nick who was diagnosed with a Mixed Germ Cell Brain Tumor in May of 2021 as he was completing his 8th grade academic year, and passed away from this form of Pediatri
Nick Gaspar was a 14 year old 8th grader who became lethargic and his normally upbeat personality became withdrawn in May of 2021. He also developed a tremor in his left hand and after being taken to his pediatrician, was quite quickly transported to Boston Children's Hospital where he was diagnosed with a Mixed Germ Cell Brain Tumor. Nick's mother Jen will talk about the next 2 years of Nick's life, which originally showed promise after his tumor was completely removed during a 12 hour Craniotomy. Unfortunately in the months ahead , Nick's condition went downhill, and he passed away on May 19th of 2023. 
49:41 12/28/23
Sophia Takla was crowned Miss Oregon in 2022 and had a top 10 finish in the 2023 Miss America Pageant. Sophia is also a huge advocate for the cause of Pediatric Cancer as she will explain on today's p
Sophia Takla's 8 year old cousin Tristan passed away from Medulloblastoma 15 years ago when Sophia was 8 years old, as was Tristan. Sophia will talk about that period of time and what she has been doing as a Pediatric Cancer advocate since his Tristan's passing and will continue to do for many years to come.  Sophia will also discuss her being crowned Miss Oregon in June of 2022 and her top 10 finish in the Miss America Pageant in 2023.  Sophia has accomplished so much in her life already and at 23 years old, has an incredibly promising future ahead . 
50:04 12/21/23
Carol Pound will talk about her son Max who was diagnosed with the Pediatric Brain Cancer Diffuse Hemispheric Glioma when he was ten years old , fought his battle in the best manner possible, but pass
Max Pound was an outstanding young athlete and full of life until 2020 when  his mother Carol, who in her professional life was involved with early oncology drug development, noticed some concerning health signs and took Max to get them checked out. Shortly after that Max was diagnosed with Diffuse Hemispheric Glioma, a very rare form of Pediatric Brain Cancer at the age of 10. Through much of 2021 Max was feeling well enough to return to his athletic endeavors and to school when possible, but at the end of 2021 Max had a relapse, struggled through 2022 , and passed away on January 11th of 2023.Carol will talk about her beloved son and the Max Pound Foundation which her family started to honor Max's memory in 2023. 
46:06 12/17/23

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