Show cover of Love Conquers Alz

Love Conquers Alz

2024 #1 ALL TIME DEMENTIA PODCAST /GOODPODS and 2020 WINNER BEST PODCAST - New Media Film Festival. Caregivers have one of the hardest jobs in the world. Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Don Priess both know this is a disease that cannot be faced alone. In fact, their Oscar Qualified film based on Susie's Mother, MY MOM AND THE GIRL starring Valerie Harper in her final performance - has and continues to touch people all over the world. Their goal was to let others know they are not on their own and to help them find the JOY in the journey. And that's just what they do in their Podcast "Love Conquers Alz".

Tracks

MAX SHERMAN: Former Texas Senator/Author of “Releasing the Butterfly: A Love Affair in Four Acts” -A Caregiver's Story and Journey
“I’m a lawyer by trade, politician by practice, and an academic by accident.”   These are the musings of the remarkable, and I have to say, charming, Max Sherman.   In Episode 89, we interviewed a young and energetic 89 years old, Max Sherman. Max's  life has been significantly influenced by women. But one in particular has shaped who he is today. In 1953 Max was among 4 high school boys conducting a church service at a local jail when he first laid eyes on a Gene Alice, who was there with her fold up field organ. And their love affair still thrives to this day...  In 2002 Gene Alice started noticing that something was different and soon after was diagnosed with Alzheimer’s.  Through the inevitable progression of the disease Max and Gene Alice’s journey together is now chronicled in the beautiful and poignant memoir, “Releasing the Butterfly: A Love Affair in Four Acts”. It's a  caregiver's story and journey.  An honest, heart wrenching and insightful look at not only the disease but of a bond that could not be broken. Max shares many of the insights he has gained as a caregiver, and thoughts on how to maintain connection even while grieving the losses of the fading abilities of a spouse living with Alzheimer’s.Max boasts a rather formidable body of work which includes: Texas State Senator, President of West Texas State University, and Dean of the LBJ School of Public Affairs. His leadership roles also include President of the National Association of Schools of Public Affairs and Vice President of the Harry S. Truman Scholarship Foundation.  AND recently he was honored as an 80 over 80 recipients. Don and I had the best conversation chatting with the author of this ode to a 70 year love-affair that will warm your heart and make you want to fall in love all over again!Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
53:15 5/17/24
LANCE A. SLATTON: Senior Care Influence & Author of The All Home Care Matters Official Family Caregivers' Guide
Heeeeeeee’s back! And Don and I couldn’t be happier!  Our dear friend and “Senior Care Influencer”, Lance A. Slatton is not only a Writer, Author, and Healthcare professional with over 20 years in the healthcare industry…he is a number one class act and all around nice guy! Oh, and he is also the busiest person I have ever met! I thought I was juggling. Nope. Apparently not. ;)In case you’re not familiar with Lance, here’s just little background on this Care Commander: Lance is a native of Michigan, and the Senior Case Manager at Enriched Life Home Care Services, a leading care provider.  His ingenuity and fortitude led to the creation of  All Home Care Matters, an informative podcast and YouTube show devoted to helping families, caregivers, and their loved ones navigate long-term care issues. All Home Care Matters was recently the recipient of the Silver Creator Award from Google & YouTube. Lance also produces and Co-Host’s two additional shows (I know! What are we doing wrong!?): Conscious Caregiving with L & L, co-hosted by Lori La Bey and The Caregiver’s Journal with Denise M. Brown.If that were not enough, he also writes a monthly column for McKnight’s Home Care News, DailyCaring.com, and AgeBuzz.Recognizing Lance’s contributions to the industry, he was named a “50 Under 50” honoree by the New York City Journal for 2023  and has been chosen as a Juror for the Academy of Interactive Visual Arts for 2023 and 2024.And because he apparently has so much spare time on his hands Lance has now authored a new book, “The All Home Care Matters Official Family Caregivers' Guide”, a beacon of wisdom, meant to guide you through the complexities and emotional tides of becoming a caregiver.  So, grab a cuppa tea or coffee and find out more about this new endeavor and everything else in the wild world of the inimitable Lance A. Slatton. And remember -  Love is Powerful. Love is Contagious. And Love Conquers Alz.xoxo SusieSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
53:14 5/2/24
CINDY 'N CHRISTINA HARDIN WEISS: Adaptive Equipment Gurus Making Caregiving Safe and Sound
📣 New Love Conquers Alz Episode #87!Don Priess and I were so excited to talk to Christina ‘n Cindy Hardin-Weiss WEISS (https://adaptiveequipmentcorner.com), the founders of Adaptive Equipment and Caregiving Corner, IMHO - THE best place to go for educational and instructional videos and home medical equipment product reviews for professional caregivers, families caring for a loved one, and older adults who want to age in place. We are such HUGE fans of these ladies. Cindy and Christina bring years of expert knowledge and hands on experience to their educational videos and adaptive equipment reviews. If they endorse it - you know it's good! They literally put each and every product to the test! Even adult diapers! Come on! They are the real deal! They are the Ralph Nader for Caregivers.Cindy Hardin-Weiss is a Physical Therapist and has spent the majority of her career in home healthcare. Her passion is to assist people in maintaining their independence, especially when it makes a difference in their ability to remain in their homes. Christina Hardin-Weiss is a Speech/Language/Dysphagia Therapist. She has spent most of her career treating patients in skilled nursing facilities. She enjoys working with individuals who have dementia and their families, as well as those that have difficulty eating, chewing, and swallowing due to illness or disease.Their mission is to help you maintain yours or your loved one's dignity and independence while remaining safely in the comfort and familiarity of your home. It is a noble cause indeed and we can’t wait for you tto get to know Cindy and Christina Hardin-Weiss.Please listen on your favorite platform (https://linktr.ee/LCALZ) and/or watch us on our YouTube Channel (https://www.youtube.com/channel/UCRgcPBktXGd5ubfJf4xmJRA). And share, share, share! 💜 Remember:Love is PowerfulLove is Contagiousand Love Conquers Alz!Love,SusieChristina 'N Cindy on LinkedInSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
47:33 4/24/24
JENNY ABELING: Introducing Kids to Long Term Care
Advocate. Leader. Caregiver. Jenny Abeling is dedicated to helping those in need, through the complexities of long-term care. Currently she is the Governor’s Commissioner on Senior Services, working tirelessly to raise up senior related needs across the State of Oregon.  Formerly the Essential Worker Healthcare Trust Director, Jenny led a first in the nation approach to lift Long -Term Care workers by supporting their health and wellness.Now she has launched JennyAbeling.com, where she provides personalized support to individuals, families and Long -Term Care workers, helping to navigate their care needs.  Featured on CNN, Jenny shares her knowledge and experience through media, podcasts, speaking engagements, and events to harmonize empathy with her unique expertise. Jenny was recently honored by the Gray Panthers as a recipient of the coveted Above and Beyond Award honoring Long-term Care Workers.No Jenny has branched out as an author with A Kids Book About Long-Term Care, titled A Kids Book About Long-Term Care.  She truly is a bright light in the world of caregiving and we were thrilled to have the opportunity to talk to her!Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
64:41 4/3/24
DR. MITCH CLIONSKY - Dementia Prevention: Using Your Head to Save Your Brain
Don and I both agree that Episode 85 (wow!), ranks as one of our favorites to date. Our amazing guest, Dr. Mitchell Clionsky is a board certified neuropsychologist with more than 30 years of clinical experience and has treated more than 20,000 patients with cognitive problems. Dr. Clionsky understands the toll of memory disorders as both a caring professional and as the son of his mother Muriel, who died in 2008 from dementia. Dr. Clionsky holds staff privileges on four hospitals and in addition to dementia, he evaluates ADHD, concussions, and a variety of neurological conditions. From years of patient data, Dr. Clionsky and his wife/partner Emily Clionsky, MD have developed the Memory Orientation Screening Test or MOST, a highly valid measure that provides a single, numerical score that reflects cognitive status and change over time. MOST helps identify -cognitive problems- earlier in the deterioration process so health professionals can intervene and help their patients live better lives. Now Dr. Clionsky and his wife, Emily, have taken what they do in their consulting room and have written a new book, Dementia Prevention: Using Your Head to Save Your Brain. It's an exciting, fun to read, motivating, and potentially life changing read that is the culmination of 45 years of extensive clinical evaluation and treatment. Scientifically detailed and vetted by Johns Hopkins University doctors and content experts, it is translated into terms that almost everyone will understand. 8 out of 10 people over 55 say that Alzheimer’s disease and other dementias are a major concern. Well now there is something that can be done. Dementia is not inevitable, but for 1 out of 2 people it is preventable. And we are so excited to share all about this fascinating breakthrough. Enjoy!!Connect with Dr. Clionsky here.LINKEDINFACEBOOKSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
55:44 3/12/24
CHRISTINA KEYS: Turning a Mess into a Powerful Message
If you don't know  the preeminent caregiving champion, Christina Keys, you're in for a valuable treat! Christina was living her best life, enjoying a successful career, she was financially and spiritually healthy and happy -  when in 2013 her beloved mother suffered a devastating stroke and was given a 1% chance to live. In a blink of an eye Christina went from care-free career woman to full-time caregiver. With Christina’s dogged and loving support, her mother survived - but after 4 years Christina was bankrupt, financially, emotionally, mentally, and physically. And suddenly she was faced with a diagnosis of her own. Her body was shutting down from the stress and she was given 6 months to live. She knew she had to completely change her life…and she did. But she decided to not only transform her own life, but to help change the lives of other caregivers.  Christina’s mission to make sure caregivers everywhere are seen, heard valued and appreciated and are never alone through her local work with Loving Them Forward , the Non Profit she founded, and the national work she is doing as the Director of Community Growth at Caregiving.com.  We can’t wait for you to hear more about her remarkable transformation and journey!Connect with Christina: FACEBOOK  INSTAGRAMConnect with Caregiving.com: https://www.caregiving.comApply and Learn more about the Caregiving.com CaregiverSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
51:17 2/16/24
DR. GEORGE ACKERMAN, Ph.D., J.D., MBA: From Tragedy to Advocacy for Parkinson's Awareness
In Episode 83, Don and I had a heartfelt and informative conversation with Dr. George Ackerman who started the movement Together for Sharon to honor his late mother Sharon Riff Ackerman, who succumbed to complications from Parkinson's Disease and Alzheimer's Disease on January 1, 2020. George is an absolutely  tireless #advocate for those who suffer with PD and their families and has an unending hope for a cure. Come join us and learn about this important movement and why this is so important to George and his family.ORDER YOUR WRIST BANDS HERE: https://www.togetherforsharon.com/con...Please go to their site and follow their socials to show your support and solidarity:SiteFacebookInstagramTikTokLinkedInYouTubeTwitter/XLove Conquers Alz!Susie xoxoSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
49:51 1/15/24
PIPPA KELLY: The Creative Caregiver Connection
In Episode 82, Don and I had a fantastic conversation (no surprise) with  UK’s own PIPPA KELLY. Author, podcast host, award-winning blogger, contributor to numerous national newspapers and magazines, Pippa has truly made a name for herself in the dementia and elder care universe. It was Pippa’s own personal journey with her mother, who battled vascular dementia for 10 years, that shaped her creativity and launched her career.   A prolific writer for the Huffington Post, The Guardian and many others, she also shares her thoughts and experiences on her popular, Covid-born podcast “Well I know Now…So Much More About Dementia.”  And has become one of the UK’s top 10 dementia influencers.  But Pippa Kelly’s artistic proclivities know no bounds. Her debut novel “Invisible Ink” deftly draws upon her experiences with her mother to craft a fascinating, poetic fictionalized tale that captures the intricacies of her mom’s insidious disease.In this episode, we talk about the importance of sharing stories and personal experiences. The role of humor and creativity in advocating for better care. The need for education and ongoing advocacy.. The importance of creating community and promoting human interaction. And finally, the positive impact of therapy dogs, especially golden retrievers, is acknowledged.Pippa Kelly is a force to be reckoned with in the literary and dementia space. And let’s face it, we absolutely love her accent. Follow Pippa Kelly here:TwitterFacebookInstagramLinkedInSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
80:55 12/14/23
MARY LOU FALCONE: I Didn't See it Coming: Scenes of Love, Loss, and Lewy Body Dementia
My co-host , Don, and I have been blessed with so many amazing guests, but truth be told, our 81st guest, Mary Lou Falcone , ranks as one of our very favorites!! We fell in love with this EXTRAORDINARY woman and we have no doubt you will, too.For over 50 years, Mary  helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Then combining communication skills with her background as a performer and educator, she now adds another layer: advocate for Lewy body dementia (LBD) awareness.Mary became a caregiver when her father had a massive stroke. She was 10 years old. The experience prepared her for the day, many years later, when her husband, a world-renowned cartoonist, illustrator, painter, and 1950s rocker, Nicholas 'Nicky’ Zann, was diagnosed with Lewy Body Dementia (LBD).  Nicky, who died from LBD in 2020, was the catalyst for Mary's first book,  I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia.     "Mary Lou Falcone is an expert storyteller. After years of telling other people's stories, she now tells her own compelling story." Friend and client, James Taylor. In her memoir of love, loss, and Lewy body dementia (LBD), Mary Lou Falcone takes readers on a cathartic journey of caregiving that is filled with hope, laughter, and tears, making stops along the way for music, romance, and surprises. Written to inspire and give hope, Mary Lou unflinchingly shares in detail her late husband’s struggle with LBD, providing informative, compassionate, and inspiring insights into dementia. As she emerges transformed and energized, so will you after reading I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia . Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers. Enjoy Episode 81!!Love conquers alz,Susie xoSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
61:45 11/16/23
JACKLYN RYAN: Author of Bestseller "Caregivers Scaretakers" - Exposing Fraud in Senior Care
Season 8 kicks off with episode 80 - a MUST LISTEN to show featuring JACKLYN RYAN - a sought-after speaker, consultant, workshop presenter, and best-selling author of the gut-wrenching book, “CareGivers, ScareTakers - Exposing Fraud In Senior Care”. With an aging population, families are struggling with dependable, trusted care. This process is riddledwith problems. What can adult children do to protect their parents from abuse and financial theft and also protect their inheritance and peace of mind from unscrupulous caregivers?Just like all of us, Jacklyn was instantly faced with a heart-wrenching time in life when her parents were no longer able to care for themselves are soon learned the world of home healthcare agencies is riddled with what she calls inappropriate and unscrupulous ScareTakers. Armed with her and other's powerful personal stories, plus extensive research on this undeniable problem, Jacklyn is sharing this life-changing information through her enlightening book in hopes of revising the process for those looking for appropriate and trustworthy care for their loved ones. We covered the following topics and more:• How to better prepare when you enter the "wormhole of healthcare" • The Actions You Can Take to Safeguard Your Family Inheritance and Expose the Scammers. • Don't wait for a Crisis to happen! Prepare YOUR OWN Care Ahead of Time. • We neglect to make a plan for our own care when we can no longer care for ourselves. • Make a Plan and Put it in Writing. • Discover resources, how to research and reviews on agencies and caregivers. • "My Father  (or Mother) is in Love with His Caregiver! "Connect with Jacklyn here:EMAIL: info@caregiverscaretakers.comWEBSITE: https://caregiverscaretakers.comLinkedIn: Jacklyn (Jacci Perry) Ryan X: @Jacklyn72519695Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
62:43 11/5/23
STEPHAN JACKMAN - CEO ALZAMEND NEURO : New Lithium-based Drug that Offers Alzheimer's Patients Hope.
In Episode 79, my co-host, Don Priess, and I had an enlightening conversation with Stephan Jackman, the CEO of Alzamend Neuro, a clinical stage biotech company committed to “Making Alzheimer’s Just a Memory™.”  Stephan shared information about the new lithium-based drug that offers Alzheimer's patients hope.Stephan is laser focused on his mission to rapidly develop and market safe and effective treatments that address the unmet needs of those living with Alzheimer’s and other neurodegenerative diseases and psychiatric disorders, through advanced research and development.Their current pipeline consists of two novel therapeutic drug candidates, AL001 – a patented ionic cocrystal technology delivering lithium via a therapeutic combination of lithium, proline and salicylate, and AL002 – a patented method using a mutant-peptide sensitized cell as a cell-based therapeutic vaccine that seeks to restore the ability of a patient’s immunological system to combat Alzheimer’s. Both of our product candidates are licensed from the University of South Florida Research Foundation, Inc. pursuant to royalty-bearing exclusive worldwide licenses.Our primary target, Alzheimer’s disease, was among the most-feared diseases (second only to cancer) among Americans, according to a 2011 survey by the Harvard School of Public Health. Alzheimer’s is also the sixth leading cause of death in the United States according to a 2021 report from the Alzheimer’s Association, a nonprofit that funds research. Existing Alzheimer’s treatments only temporarily relieve symptoms but do not slow or halt the underlying worsening of the disease, which currently affects roughly 6.2 million Americans and that number is expected to grow to 13 million individuals by 2050.Enjoy the listen.Love Conquers Alz,Susie Alzamend NeuroStephan JackmanSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
61:28 10/2/23
MARIA KENT BEERS: Remember Me Podcast + Community for Frontotemporal Dementias - Accept the Good
In episode 78, Don and I had a fantastic conversation with the warm-hearted and incredibly delightful, Maria Kent Beers.  Maria, along with her partner, Rachael Martinez, is the co-founder and co-host of the Remember Me Podcast + Community. Maria has always had a love of radio and editing, receiving a TV Production Degree from Boston University where she was a host of BU In The Morning Radio Show. She also spent time at MTV Radio as an intern in NYC before falling into the world of fashion merchandising for 7 years. After losing her beloved mother, Amalia  to FTD in 2020, Maria had a desire to share her mom and experience as a caregiver to the world and the seed for the Remember Me Podcast + Community was planted. Since its inception, the Remember Me Podcast has tripled its audience as the awareness for brain health, Alzheimer’s and FTD continues to grow. Maria has served as a guest speaker at Alzheimer’s and caregiving conferences around the world and continues to be a resource for others on the FTD journey. Remember Me Podcast + Community has collaborated with partners such as Learn FTD, The Association for Frontotemporal Degeneration (The AFTD) and  the Bluefield Project to share their stories and offer support to the FTD community. You can follow along at @remembermepodcast and listen on your favorite podcast platform. World FTD Awareness Week Sept 24 - Oct 8, 2023. Remember Me is going on a 3-city tour (NYC, Philly, DC) to raise awareness of FTD  Sept 25 - 28th. - please see their tour page here.  Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
63:55 9/14/23
ASHTON APPLEWHITE (TED Speaker/Spokesperson For Anti-Ageism): AGEISM IS BAD FOR YOUR HEALTH
My co-host, Don Priess, and I had the distinct pleasure of speaking with, Ashton Applewhite,  the internationally acclaimed spokesperson for the emerging movement to raise awareness of ageism and to dismantle it.  A co-founder of the Old School Anti-Ageism Clearinghouse, she has been recognized by the New York Times, The New Yorker, National Public Radio, and the American Society on Aging as an expert on ageism. She speaks widely at venues that have included the TED main stage and the United Nations, has written for Harper’s, the Guardian, and the New York Times, and is the voice of Yo, Is This Ageist? She has been named as a Fellow by The New York Times, Yale Law School, and the Royal Society for the Arts.In 2016,  Ms. Applewhite joined the PBS site Next Avenue’s annual list of 50 Influencers in Aging as their Influencer of the Year.  In 2022, she appeared on HelpAgeUSA’s inaugural 60 Over 60 List and on Fe:maleOneZero’s first international edition of 40 over 40 – The World’s Most Inspiring Women, and received the Maggie Kuhn Award from Presbyterian Senior Services.Ms. Applewhite is also the author of Cutting Loose: Why Women Who End Their Marriages Do So Well, described by Ms. magazine as “rocket fuel for launching new lives.” As the pseudonymous author of the Truly Tasteless Jokes series, she was the first person to have four books on the New York Times best-seller list and was a clue on “Jeopardy."  Connect with Ashton Applewhite: Facebook  X   Instagram Email: ashton@thischairrocks.comSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
56:24 8/26/23
LANCE A. SLATTON: 2023 “50 Under 50” Honoree - Redefining Caregiving
“Anything is possible if you have the desire and passion to make it happen.” That is the mantra of our Episode 76 guest, Lance A. Slatton. Tirelessly dedicated to giving back, Lance has become a standout in the healthcare industry. A native of Michigan, he is a Senior Case Manager at Enriched Life Home Care Services, a leading care provider. His wealth of knowledge and experience, along with his innovative approach to providing care, has led to his award-winning home care company being named Michigan’s top-rated service over the past five years.But Lance is committed to sharing his wealth of knowledge and experience far beyond the Michigan state line. His ingenuity and fortitude led to the creation of his podcast and YouTube show, All Home Care Matters. Reaching over 12 million viewers globally.If that weren't enough, as a contributor to McKnight’s Home Care News, Lance’s articles explore diverse topics from “the state of Medicare” to “innovations in senior care technology” to “caring for the caregiver” and more.Recognizing Lance’s contributions to the industry, he was named a “50 Under 50” honoree by the New York City Journal for 2023.  Don Priess and I share a candid, enlightening conversation that explores the challenges, possibilities and advantages of home care for our loved ones. If you are a caregiver, know a caregiver or may be a caregiver someday, today’s chat with the inimitable Lance A. Slatton is a must listen. FOLLOW LANCE: Apple Podcast YouTube FB Twitter Instagram LinkedInSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
78:17 7/28/23
BETTINA MORROW - Everything You Wanted to Know About Adult Protective Services (But were afraid to ask!)
If you have ever wondered just what the role of Adult Protective Services truly is, when should you contact them, what kinds of investigations they make, and how much power do they actually have when it comes to protecting your loved one or any vulnerable adult, then this is required listening! (Even if you have never wondered, I recommend this show!)   My co-host, Don Priess, and I had an incredibly candid and enlightening  conversation with Bettina Morrow,  currently the Supervisor of Adult Protective Services in Jefferson County, Colorado.Bettina shares her invaluable, honest perspective of the program  that promotes "the safety, independence, and quality-of-life for vulnerable adults who are, or are in danger of, being abused, neglected by self or others, or financially exploited, and who are unable to protect themselves."  A program that can differ from state to state and even from county to county in terms of definitions, client eligibility requirements and standards of practice. With over 20 years of international experience, Bettina Morrow started her career in her home country of Australia before moving to the UK. There she practiced social work for 9 years, eventually leading to her move to the U.S.  Bettina is a true unicorn, having spent the last 15 years working with at-risk and vulnerable adults with specific expertise in elder abuse, dementia, and guardianship.  Bettina has obtained a Bachelor of Social Work and a Masters in Dementia, is a Nationally Certified Guardian, and has presented at state and national conferences. Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
77:58 7/10/23
TERRI PEASE, Ph.D., CONSULTANT - FROM CARE PARTNER TO CAREGIVER
In Episode 74, Don Priess and I had an incredible conversation withTerri Pease, Ph.D., an Author, Coach, and Consultant for Spousal Caregivers. As a highly experienced professional in the social services and healthcare industries, Terri has dedicated her working life to encouraging Parkinson's caregivers, to make self-care real, practical, and possible. But really, the same applies to almost all Spousal Caregivers - including those caring for spouses with Alzheimer's. Terri has has also dedicated her life to working with people who are facing highly stressful situations. Her experience has taught her how to provide supportive and trauma-informed care to those who need it most. When Terri married her husband who had Parkinson's Disease, she brought her wealth of knowledge and experience to bear on caring for him. She trained staff in organizations around the United States on how to offer supportive, empathic, and trauma-informed care. Her professional experience has informed her approach to caregiving, and to encouraging Parkinson's caregivers to make the idea of self-care real, practical, and possible. In addition to her work as an author and caregiver advocate, Terri's book, "Love, Dignity, and Parkinson's: from Care Partner to Caregiver" (Paperback – October 19, 2022 ), is a great resource for caregivers whose spouse or loved one has been diagnosed with Parkinson's Disease. and are feeling overwhelmed and unsure of how to best care for them without losing themself. The book offers a new approach to caregiving that can help ease the stress and anxiety that come with this diagnosis. In this book, you'll learn how to strengthen your caregiving capacity, maintain peace of mind, and live a less stressful, upsetting, or lonely caregiving life. You'll also find practical tips on how to deal with common experiences like changes in mood, challenging behavior, and communication difficulties.  Most importantly, Love, Dignity, and Parkinson's will serve as a constant reminder that you are not alone in this journey. With compassion and wisdom, Pease offers invaluable insights into the caregiver experience, drawn both from her extensive professional experience providing trauma-informed care and from her own years as a caregiver to her husband. This book is an essential resource for any caregiver navigating the challenges of Parkinson's Disease or any challenging disease.Enjoy! xoxSusieTerri continues to post information, support, and resources at  SEABURY HOUSE.You can also connect with Terri on LINKEDIN.Please support our documentary: NO COUNTRY FOR OLD PEOPLE by pledging a tax deductible donation here on our partner site, The National Consumer Voice for Quality Long Term Care  You can watch the sizzle HERE.Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
65:18 6/29/23
Meet the Founders of AlzAuthors: The POWER of Caregiver Collaboration
Meet the Founders of AlzAuthors! In episode 73, my co-host, Don Priess, and I had the unique pleasure of speaking with the three co-founders of AlzAuthors.com. In 2016, our guests, Marianne Sciucco, Jean Lee, and Vicki Tapia, founded the non-profit AlzAuthors.com, a global community of over 300 writers who are writing all about dementia from their personal experience. This ever-growing global community is united in an effort to light the way for others, with a vision of lifting the silence and stigma surrounding Alzheimer’s and other dementias through the sharing of personal stories.  If you're writing your own story or are thinking about it, this is a must see/hear episode! Regardless, you will be enriched by this dynamic trio who are truly Caregiver Crusaders!You can find out more about AlzAuthors on their Website  and their podcast, Untangling Alzheimer's and Dementia.#writers #writer #podcast #experience #love #art #medical #nurse #communitySupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
65:18 6/14/23
ANTHONY COPELAND PARKER: Who Runs The World?! Tony & Cat. That's who.
Anthony "Tony" Copeland-Parker  is back for a record 3rd time on Love Conquers Alz... and Don and I are thrilled. Tony and his, partner Cat, have a unique and inspiring story  that has been unfolding before our eyes  and this new chapter is as heartening as ever.  For those who may not be familiar with Tony andhis partner, Cat, here's a little background to get you up to speed. (I'm killing it with the running puns!)  Tony and Cat were in there 50s going their merry way,  when they were presented two life-changing pieces of news...at the same time. Tony was told he needed a heart valve replacement and Cat had early-onset Alzheimer’s.  But both being endurance athletes, their reaction to this news was, let's say, unique. They retired, sold their home, & became nomads, running marathons & half-marathons - literally over the world.Their book, Running All over the World, Our Race Against Early Onset Alzheimer’s, is  an engaging travelogue with a heart.  Don't let the word "Alzheimer's" give you the wrong impression! It's filled with fun, humor, heart, and adventure. It's chock-full of interesting facts and detailed travel advice. And if you ever thought about running a marathon, but just can't seem to check that off your list, you'll experience the thrill of the finish…blister-free! The book is an account of their 5+ years of flying, running, walking, sailing, & sightseeing from Atlanta to Antarctica and back again.Now that Cat's Alzheimer's has progressed and she can no longer run marathons, she and Tony have embarked on a new chapter in their unique and awe-inspiring story.  Enjoy this episode!Love,Susie SPECIAL GIVEAWAY! The first 5 people to leave a comment at RunningwithCat.com  will receive an ebook version of  Tony's book and one signed copy! Leave a comment and  then let me know you did at  loveconquersalz.susie@gmail.com. Good luck!Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
55:49 5/20/23
GAIL WEATHERILL the DEMENTIA NURSE: What The Brain Cannot Remember, The Heart Can Never Forget
In episode 71, Don and I thoroughly enjoyed talking to  Gail Weatherill, RN BSN CAEd, AKA the Dementia Nurse.  Gail is a practicing RN for 43 years, a board-certified Alzheimer's Educator, a fearless advocate, and the author of The Caregiver's Guide to Dementia: Practical Advice for Caring for Yourself and Your Loved One. Gail became a family caregiver herself when a beloved client with no family moved in with her and her family for her last few years of life. She understands the demands of 24/7 care of a loved one with dementia. She now works to compensate for our health "care" system's failure to support caregivers in meeting those demands. Gail recently shared her irreverent approach to the American health care machine  in a dynamic interview for our documentary, NO COUNTRY FOR OLD PEOPLE.  It's no wonder she has  become an effective and sought out advocate for those in deepest need. Her advocacy led to her participation in the Nurses Take DC movement for safe staffing ratios in our hospitals and long-term care facilities.  Through her writing, speaking, and coaching, Gail lives to educate dementia caregivers "one heart at a time".  She maintains a closed caregiver support group on Facebook, a group that has grown to 50,000 members from over 100 countries. The need is global and great. As Gail makes her way through her fortieth year of nursing practice, she will tell you she is just getting started.  YOU'RE GOING TO LOVE HER! When she's not busy rabble-rousing for health care causes, Gail can be found reading, sewing fidget quilts, and missing her two daughters whom she says live entirely too far from their mother. She shares her home in Charlottesville, VA with a cat named Baby Silas who lets her use the laptop when he's not busy warming his belly on it.Enjoy!xox SusieSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
71:01 4/29/23
ELLEN BELK, BC-DEd CDP - Board Certified Holistic Dementia Educator & Silver Living Strategist
For our 70th episode, we spoke with the very irrepressible Ellen Belk, a domestic educator and Silver Living strategist, with a refreshing "call it as she sees it" style that leaves a lasting impression on anyone who works with.  Ellen is the company founder of the K.I.M. Academy (Keep In Mind) -  An online Dementia Education platform to serve both professionals & families with on-demand, interactive learning-sessions for adult learners. Ellen has an impressive 20+years of operational experience in Senior housing as a holistic Dementia expert, author, trainer, and influencer. She brings a unique blend of proficiency in operations, sales, team building, resident experience, and innovation to her clients. Ellen is on a mission to elevate the collective (global) Dementia IQ  by dispelling the myths,  elevating the truth, and highlighting the LIVES that are still lived after a dementia diagnosis. As a rising Brand Ambassador, Ellen is a trusted voice seeking to share information about technology products and other services benefitting aging consumers within her circle-of-influence and network. Therefore, she’s an asset to those innovator cohort groups who understand the need for influencer marketing strategies to reach Boomer consumers and ‘silver citizens’.Ellen is simply not satisfied with the status quo. If you tell her, “This is the way it’s always been done”, she'll be the first voice to share an alternative solution.  Her motto: Together we are stronger. Be the change. We couldn't agree more! Enjoy!xoxo Susie and DonFollow Ellen Belk on LinkedIn, YouTube, PinterestContact: kim.info@keepinmindinc.comSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
80:03 3/25/23
DR. MIRIAM ZYLBERGLAIT LISIGURSKI: The 3G's for well-being: Goal, Grit and Growth & The Truth About Doctor Burnout
In Episode 69, Love Conquers Alz hosts, Susie Singer Carter and Don Priess, cover a wide range of timely topics with the extremely accomplished mother, wife, educator, and physician, DR. MIRIAM ZYLBERGLAIT LISIGURSKI. Dr. Z is a triple Board-Certified Physician in Internal Medicine, Geriatrics, and Obesity Medicine with extensive clinical and academic experience. Dr. Z is also a well-being advocate with a strong focus on burnout, mental health, and leadership development.  Dr. Z discusses how her advocacy led her to author, “The 3G Cycle of Life. The Secrets for Achieving Joy, Meaning, and Well-being,” in which she asks readers to imagine life as a sequence of cycles instead of a unidirectional line, where each cycle consists of basic three components: Goal, Grit, and Growth, as well as catalysts that may facilitate or hinder your progress throughout life. Dr. Z provides a broad vision of how to use each component of the 3G Cycle in your favor, even during the most challenging circumstances, to avoid the negative consequences of chronic stress and burnout. The book includes more than thirty experts' personal and professional experiences, evidence-based data, and Dr. Z's insights and stories. Dr. Z also candidly discusses the current phenomenon of “doctor burnout”.  She blames it on a Healthcare system that does not allow doctors to practice the way that they want to. Dr. Z says there is a very big gap between what many doctors think medicine should be and what they are doing every day. Originally from Peru, Dr. Z has two awesome sons, a caring husband, and and is a caregiver for her mother who was recently diagnosed with dementia. Her dream is to help others achieve lives full of joy, meaning, and well-being.PURCHASE DR. Z'S BOOK HEREFOLLOW DR. Z HERESupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
83:19 3/6/23
DR. BUFFY LLOYD-KREJCI: Infection Prevention & Disease Control - Covid and Beyond
In Episode 68,  Love Conquers Alz hosts, Susie Singer Carter and Don Priess have a fascinating conversation with  Dr. Buffy Lloyd-Krejci, one of the foremost authorities on infection prevention and control in nursing homes and long-term care facilities. Dr. Buffy (as she likes to be called) is a frequent contributor and interview source for national and trade press concerning infection prevention and control and mitigation. Dr Buffy is  also the  author of Broken: How the Global Pandemic uncovered a nursing home industry in need of repair and the heroic staff fighting for change. In BROKEN, Dr. Buffy Lloyd-Krejci exposes an industry in dire need of a massive policy overhaul. Her book chronicles her "boots on the ground" experience visiting 200 nursing homes across the country as the pandemic brought these deadly problems into stark relief. Through interviews with patients, healthcare workers, advocate groups, and regulatory agencies, she reveals the critical flaws in a system that was set up to fail—and her bold vision for change.Dr. Buffy  states that  "Our elderly loved ones deserve to live out their final days with dignity and respect, not to be left alone to die in a broken system. But even before the COVID-19 pandemic, infectious diseases ran rampant in US nursing homes. Between one and three million infections resulted in 380,000 deaths among nursing home residents each year. That’s over 1,000 people per day. All because the nursing home industry has been struggling with Infection Prevention and Control practices (IPC) for decades."Dr. Buffy's practice, IPCWell, is headquartered in the Phoenix metropolitan area and is devoted to mitigating infectious diseases and inappropriate antibiotic prescribing in all healthcare settings to reduce adverse events, infections, antibiotic resistance, re-admissions, and death. Dr. Buffy consults with health care facilities across the United States and internationally (Doctors Without Borders). FOLLOW DR. BUFFY ON:YOUTUBE LINKEDINSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
68:54 2/23/23
MARY S. DANIEL: Caring Loud and Proud (and Creatively) During Covid and Beyond
In Episode 67, Don Priess and I have a candid - and inspiring - conversation with our first guest of the year, Mary S. Daniel, a Board-Certified Patient Advocate  whose mantra is "boldly advocate for your loved ones".  Leading by example, Mary showed us just what that looks like when she took a job as a dishwasher at the facility where her husband, Steve (diagnosed with Alzheimer’s disease in 2013 ), lived after being separated for 114 days during the lockdown due to COVID-19. The conversation delves into some of the very real challenges caregivers face navigating our ageist, ableist, and broken healthcare system that became glaringly apparent during the Covid era.  A fierce advocate, Mary shares the  incredible steps she took to make sure she kept a watchful eye and consistent connection with her husband, Steve, despite the seemingly impossible roadblocks.Mary founded the Facebook group "Caregivers for Compromise – because isolation kills too!" which has over 14,000 members and chapters in every state. Her grassroots effort got the attention of Florida Governor Ron DeSantis who named Mary to the Florida Task Force on the Safe and Limited Re-Opening of Long-Term Care Facilities. The recommendations of the Task Force were accepted by the Governor on September 1, 2020 and Essential Caregivers were allowed back in facilities to see their loved ones.On December 21, 2022, Mary announced that her beloved husband Steve, passed away peacefully that morning. One of her next posts simply said, "Now What?" Mary answers that question and much more in this "must listen"conversation. #healthcare #covid #Alzheimers #grieving #caregiving #carepartner #endalz #dementia #dementiacare #caregiver Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
64:07 2/4/23
DR. KELLYN LEE: MATERIAL CITIZENSHIP - Functional Objects Make Lives Meaningful for People Living with Dementia
In Episode 66, Hosts Susie Singer Carter and Don Priess have a fantastic meeting of the minds with their guest from the UK, Dr. Kellyn Lee, as she breaks down her new approach to dementia care – Material Citizenship - which focuses on the important role and function of everyday - personal - physical objects & tasks make a HUGE positive impact  in the caring process. Dr. Lee is the founder of WISER Health & Social Care Ltd and The Dementia Care Hub - supporting people living-well with dementia, both at home and in formal care settings. Dr. Lee is an accomplished academic with a BPS Chartered Psychologist and over 11 years-experience in “research in aging” and dementia. She has lectured in psychological research methods & fundamentals in older persons’ complex care, Chairs the Innovation and Impact Board for the Institute of Health & Social Care Management,  and is the former Co-Director of the Doctoral Training Centre for Dementia Care at the University of Southampton. Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
69:43 12/19/22
DR. ANNE KENNY: Your End of Life Choices in Alzheimer's and Any Disease
In episode 65, Love Conquers Alz hosts, Susie SInger Carter and Don Priess dive deep into the world of Palliative and Hospice Care with their guest, Anne Kenny MD, Professor of Medicine with specialty training and board certification in Geriatric Medicine, and Palliative and Hospice care.    Dr. Kenny has found immense joy in her work with individuals and their families managing issues related to the diagnosis of dementia. Her experience in partnering in the care of these families touched close to home when her own mother was diagnosed with dementia. Dr. Kenny’s shares her expertise and experience ininpatient and outpatient Palliative and Hospice care which were called on whenher mother reached the final stages of living with dementia.    The Kenny family worked together for their mother’s graceful exit from this planet Dr. Kenny has been a practicing physician for nearly 30 years and has been recognized by her peers as a “Top Doc” in Geriatric Medicine. She has been honored with a Brookdale National Fellow and the prestigious Paul Beeson Physician Faculty Scholar awards.    In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging related issues such as osteoporosis, exercise, nutrition, hormone therapy, death and dying, and frailty. She is an educator of medicine and research skills. She taught and mentored clinical and research skills to all levels of trainees including medical students, post-graduate residents and fellows, and early faculty members. She has been active investigator participating in clinical research focusing on various aspects of aging. She has over 100 scientific publicationsand presentations focused on improving the care and functioning of older adults. You can connect with Dr. Kenny here: WEBSITE TWITTERLINKEDIN FACEBOOKSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
72:12 11/28/22
BRITTANY LAMB, MD: ER Doctor Helping Dementia Caregivers Make Confident Medical Decisions
In EPISODE 64,  Co-Hosts Susie Singer Carter and Don Priess chat with Dr. Brittany Lamb, an ER Physician, Dementia Family Caregiver, Educator and Advocate. In medicine, there is a saying, "You don't know, what you don't know." Dr. Lamb is on a mission to inform Dementia Caregivers so they can make competent medical decisions on their person's behalf through anticipation and planning. Her enlightening services include such matters as advanced directives, planning for medical emergencies, how to talk to your family and determining goals of care just to name a few. So if you are someone's power of attorney, health care proxy, surrogate or default decision maker, Dr. Lamb can help create a plan to help you make informed future medical decisions and focus on spending quality time with your loved one now.Dr. Lamb openly discusses the challenges and stress doctors and healthcare workers face working within the current healthcare system. You don't want to miss this episode.You can connect with Dr. Brittany Lamb here:Facebook Group  Online Group Program Phone Consultations LinkedInInstagramFacebookSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
57:50 11/7/22
AUTHOR CINDY WEINSTEIN: "Finding the Right Words: A Story of Literature, Grief, and the Brain"
Hosts, Susie and Don are joined by Professor/Author/Caregiver, Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies - including literature -  that she used to stay connected and to manage her sadness.The narratives of the authors alternate in the book. Cindy tells the story of her father's illness, and how 30 years ago scant information was available to families about this vicious disease. She also tells the story of his life, and along the way, weaves in observations about literature and the insights she has gained from her favorite books. Bruce takes over certain sections of the text offering in-depth explanations of the science behind neurological topics including the brain, Alzheimer's and language.Cindy was born and raised in Verona, New Jersey. She received her B.A. in English and American Literature from Brandeis University, after which she went to UC Berkeley for her Ph.D. in English. She is currently the Eli and Edythe Broad Professor of English and has been at the California Institute of Technology since 1989, during which time she has published three monographs on American literature, edited several volumes, and taught classes on Herman Melville, Edgar Allan Poe, Women’s Fiction, and African-American literature. She has had several administrative roles at Caltech, including Vice Provost and Chief Diversity Officer. In 2018-19, she was an Atlantic Fellow in the Global Brain Health Institute based at UCSF and Trinity College Dublin, where she studied neurology with an interdisciplinary group of scientists, artists, social scientists, and physicians. During this time, she worked with Dr. Bruce Miller on Finding the Right Words. WEBSITETWITTERLINKEDINAMAZONCALTECHSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
56:59 10/23/22
NO COUNTRY FOR OLD PEOPLE - Susie and Don Talk About Their Upcoming Important Documentary
In Episode 62,  Love Conquers Alz Co-Hosts and award-winning filmmakers, Susie and Don  discuss what motivated them to produce their upcoming film, NO COUNTRY FOR OLD PEOPLE (NCFOP).  An important documentary that will be the required punch to the gut that forces people to take a good hard look at the Long Term Care crisis that has been going on for decades and the health-care system that is literally collapsing around us.NCFOP will be a cautionary tale that exposes the dangerous façade of stability and safety held tightly by Long Term Care (LTC) nursing facilities. A pretense propagated by a system that subscribes to the notion that honesty is far less profitable than dishonesty and cavalierly regards human beings as commodities. A system that relies on deceitful marketing to successfully divert most Americans away from the fact that decades of underfunding has left the nursing home system in dire need of a seemingly unachievable overhaul. In a case of every cloud having a silver lining, we have Covid-19 to thank for pulling the curtain back on this nationwide crisis. Still, without comprehensive and accurate data, interventions to improve outcomes and quality are limited and consumers have a difficult time discerning how risky a particular facility might be.  According to their producing partner, former Assistant Attorney General of Virginia, Rick Mountcastle (portrayed in the Hulu miniseries Dopesick by Peter Sarsgaard), it all comes down to understaffing. "With most not-for-profit nursing homes offering low pay, limited benefits, and not nearly enough training, and for-profit companies (that dominate the industry) having incentives to keep their costs low, neglect has regrettably become the industry standard."In the first six months of 2022, Susie was witness to this systemic crisis. She saw things she cannot unsee. Things  she won't unsee.  Her mother had been a resident at a 5-Star Nursing Facility in Los Angeles for 5 years – a place where she took solace in believing her mother was receiving the very best care possible.  And as it turns out, she was. Unfortunately, the “best” turned out to be the worst. Susie had been on the front lines of what she calls a systemic catastrophe daily for the first six months of 2022.  And despite her relentless advocating, her mother died July 17, 2022 from what was inarguably egregious nursing home neglect and abuse. It's unimaginable to think what happens to residents without advocates. This is Susie's mother’s story. But it could be yours For more information: No Country For Old People** If you've been a victim of Nursing Home Neglect and/or abuse, and would like to share your story in this documentary, please contactus at LoveConquersAlz.Susie@gmail.com.Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
37:06 10/6/22
ADRIA THOMPSON: The `VITAL Role Speech Therapy Plays in The Quality of Your Loved One's Life
In Episode 61, Don and I had the pleasure of speaking with Adria Thompson, a speech language pathologist, dementia educator, and owner of Be Light Care Consulting. Adria has over 8 years experience in working with individuals one on one providing speech therapy services for those with dementia.Adria has also created a dementia training program to teach therapists in 13 states how to increase their creativity, efficiency, and compassion. She creates daily content for over 200,000 professional and personal caregivers of individuals with dementia on social media platforms in a relatable, positive way that makes the condition seem a little less scary. I was particularly interested in talking to Adria about dysphagia (difficulty in swallowing) which often presents in late-stage dementia patients. Although dysphagia can only truly be diagnosed via Videofluoroscopy (VFS), also called a modified barium swallow study (the gold standard),  many Long Term Care Facilities use antiquated ways to make their official assessment based on budget and man-power. This is what happened to my mother in the last 6 months of her life. Without having her properly tested, the facility that she was at claimed she could no longer swallow safely and insisted she be fed via a G-Tube. They also refused to allow her to have anything orally for fear she would aspirate. But the truth was, my mother was not only able to swallow, she wanted to desperately.  Despite my advocating, they forbid it. I was finally able to convince them to have her assessed by their speech therapist who proceeded to diagnose her with dysphagia by watching her and placing a finger on her throat. I implored the therapist to watch me give my mother liquids from one of the sponges used for oral care. She agreed that my mother was able to swallow...for me. Her final decision was that I would be allowed to give liquids to my mother via a sponge on a stick. No one else would be given permission. Let's be honest - the decision was based on the fact that they were understaffed.  And potential liability.  Consequently, my mother suffered for 6 months from an unnecessary G-Tube,  solid chunks of mucus that formed daily which happens when liquid is withheld from a person, and the monotony of almost zero oral gratification! Can you imagine? I say almost zero, because everyday for 6 months, I brought my mother "something to drink". I was restricted by their edict that it could only be provided by a sponge that my mother had to suck. It was heartbreaking. Their attempt to keep my mother from aspirating and developing pneumonia GREATLY affected her quality of life. In truSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
60:36 9/11/22
DR. DELON CANTERBURY, Geriatric Pharmacist: DEPRESCRIBING - Saves Lives and Money
Don and I had the pleasure of speaking with  DR. DELON CANTERBURY, Board Certified Geriatric Pharmacist and Founder of GeriatRX, a Deprescribing Accelerator Program based on the premise that the majority of patients taking 15-18 medications annually are aged over 65, preventable medication errors cost nearly $21 billion dollars annually, and the ongoing inappropriate , HARMFUL, use of medications in the senior population. Too many Americans are dying from harmful medications and wasting thousands of their hard earned dollars on unnecessary prescriptions. Over 275,000 people die each year due to medication mismanagement. While other American's are wasting over $6,000 per year on unnecessary medications.GeriatRX  is a pharmacist-lead consulting service that identifies that there is a lack of support for caregivers advocating for the elderly who need help in maneuvering a very difficult health care landscape by providing high quality evidence-based medication management for our most vulnerable patients, the elderly.  Connect with Dr. Delon Canterbury:FacebookLinkedInTwitterSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
62:07 8/29/22

Similar podcasts