A collection of voices who share how vision loss is just a piece of their story. Each episode is one person's story about how they navigate their experiences.Record an Audio Message!Join Supporter's Club - $5/monthStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guests
Today, we share the heartbreaking news of Anne Peters’ passing. Anne was more than a guest on Stories of Vision Loss—she was an author and storyteller whose vibrance and laughter were a gift. Anne’s creative talents shone brightly in the young adult book, "The Dragon Who Would be King," touching the hearts of readers young and old. Her Christian faith was the cornerstone of her life, and she embodied its principles through her actions and the warmth of her companionship. She approached life with a rare combination of strength and gentleness, leaving an indelible mark on the hearts of those she met with generosity.For those wishing to revisit her voice, her interview that follows remains a cherished space and an enduring tribute. Her memory will not fade. Donations may be made in memory of Anne M. Peters to Guide Dogs for the Blind, San Rafael, CA or to the Zelma Odle Memorial Fund, c/o Abilene Christian University.Become a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
12/5/25 • 24:45
Lisa shares her story of the unbearable loss of a child and how she came to grieve her vision loss through learning to grieve the loss of her son. She gracefully gives practical advice for anyone struggling with any type of loss. We invite you into a community of people learning to live fully and build lives worth living.Facebook: Dalton's DifferenceCrisis Hotline: Text TALK to 741741Call or Text: 988Record an Audio Message!Check out a list of our guests: www.storiesofvisionloss.com/guestshttps://buymeacoffee.com/storiesofvisionlossBecome a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
10/31/25 • 45:19
Jason "Duck" Barber is an 8th generation farmer in Tennessee. He shares his discovery of AI and ChatGPT, and how he uses tech as a solo farmer with Retinitis Pigmentosa (RP). Check out his YouTube channel: Farming Blind with Duck to learn more!Record an Audio Message!Check out a list of our guests: www.storiesofvisionloss.com/guestshttps://buymeacoffee.com/storiesofvisionlossBecome a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
10/2/25 • 36:52
Today, we share the heartbreaking news of Qusay Hussein’s passing with heavy hearts and deep reverence for the extraordinary life he lived. Qusay was more than a guest on Stories of Vision Loss—he was a beacon of resilience, a storyteller whose wisdom transcended his blindness, and a man who carried himself with unwavering dignity. Qusay’s legacy lives on in countless ways—through the Qusay Hussein Humanitarian Award at UT Austin’s School of Social Work, honoring those who, like him, lead with compassion; through the colleagues who credit his spirit as their motivation in dark times; and through his own powerful words: “I believe in the power of stories… By sharing mine, I hope others can learn, grow, and find strength.”For those wishing to revisit his indelible voice and the lessons he shared, his interview remains a cherished space to remember him as an enduring tribute. The mark he has left on this world will not fade.Become a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
8/1/25 • 27:52
Lisa is a Diabetes Care and Education Specialist passionate about helping others, which started with helping her mother with diabetes. She shares her experience developing diabetes, diabetic retinopathy, and strokes. She has a wealth of professional and personal experience with diabetes, and she hopes that sharing her experience will allow others not to feel so alone on their parallel journey.Lisa.Golden@twc.texas.govRecord an Audio Message!Check out a list of our guests: www.storiesofvisionloss.com/guestshttps://buymeacoffee.com/storiesofvisionlossBecome a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
7/11/25 • 30:34
Nazanin shares her journey as a research professor studying health disparities and equity in various populations (including diabetic retinopathy). She describes her visual experience as always legally blind, but not a label that defines her life. Though, it has helped make her an excellent problem solver! She talks about parenting and learning to ride a bicycle again as an adult.Record an Audio Message!Check out a list of our guests: www.storiesofvisionloss.com/guestshttps://buymeacoffee.com/storiesofvisionlossBecome a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
6/27/25 • 31:37
Mary Tyler Moore is a cherished figure in the hearts of many with her enduring joy for life. She was a graceful and talented award-winning actress, producer, author, media executive, and advocate for diabetes research. Her husband, Dr. Robert Levine, shares information about the Mary Tyler Moore Vision Initiative that was created in her honor along with some personal moments they shared.https://www.marytylermoore.orghttps://www.breakthrought1d.orgRecord an Audio Message!Check out a list of our guests: www.storiesofvisionloss.com/guestshttps://buymeacoffee.com/storiesofvisionlossBecome a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
6/6/25 • 23:28
Debra shares her vision for The Blind Kitchen after learning about RP at the age of 28 as a single mother of two small children.Record an Audio Message!Website: The Blind KitchenYouTube: @theblindkitchenCheck out a list of our guests: www.storiesofvisionloss.com/guestshttps://buymeacoffee.com/storiesofvisionlossBecome a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
5/23/25 • 28:53
Veteran, Steve Baskis, shares his experience turning his focus to outdoor adventures after losing his vision while serving in the military. He shares techniques for sailing, biathlon (skiing and shooting), climbing, and how to prepare for an adventure through gathering a good team.Record an Audio Message!www.stevebaskis.comwww.blindendeavors.orgCheck out a list of our guests: www.storiesofvisionloss.com/guestshttps://buymeacoffee.com/storiesofvisionlossBecome a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.
5/9/25 • 37:52
Qusay Salih Hussein Al-Mamari shares his memoir and story of becoming a refugee from Iraq to the USA after a suicide bomber took his vision and changed the course of his life as a teenager while playing a volleyball match in a stadium with his brothers.Despite incredible challenges and physical trauma that resulted in more than 70 reconstructive surgeries, Qusay shares his story with unforgettable positivity, strength, humor, and courage. He makes life in Iraq and the United States come alive for us and we see new things through his eyes.You will never forget this incredible testament to human resilience and determination.Record an Audio Message!https://www.qusayhussein.org/Amazon: Can You Open My EyesStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/month
4/4/25 • 25:24
Jeanne shares her story of healing her trauma through truth as we discuss her memoir Good Eye, Bad Eye. She has lived her life as a monocular since the age of two, and has worked as a journalist and psychotherapist. Her insights into her personal healing journey are valuable for anyone.Record an Audio Message!Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/month
3/21/25 • 27:03
Wayne Tuttle "The Blind Guy" and Titanic historian, shares his experience adjusting to RP, reclaiming his enjoyment for scuba diving, and the difficult decision to stop driving while continuing to love his hobby of snowmobiling.www.thatblindguy.caStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
3/7/25 • 21:08
Introducing MJ Jefferson, Exectutive Producer and Creative Director of Stories of Vision Loss podcast.Record an Audio Message!Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/month
2/21/25 • 10:48
Brianna "Nana" Hnilo shares her love of birds and animals, and tells us about being born with Fraser Syndrome. She also shares how she got into writing ghosts stories through her love of Braille.Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
2/7/25 • 16:42
Judge David S. Tatel shares his RP journey throughout a lifetime of accomplishments. He served nearly 30 years on America's second highest court, the United States Court of Appeals for the D.C. Circuit, where many of our most crucial cases are resolved—or teed up for the Supreme Court. His story of fighting for justice over many decades, with and without eyesight, is an inspiration to us all - and the book he wrote about it is a fantastic read:Amazon: Vision - A Memoir of Blindness and Justice by David S. TatelStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message for us
1/24/25 • 16:01
Happy New Year! Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message for us
12/27/24 • 01:42
Ashley King shares her story of International travel, methanol poisoning, building her acting career, and producing a play with a companion podcast, Static: A Party Girl's Memoir.Apple Podcast: Static - A Party Girl's MemoirYouTube: StaticStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
12/6/24 • 42:37
Prabath Wickramanayake takes us through his RP journey growing up in Sri Lanka, going to school in New Zealand, and living in Australia. He encourages everyone to get out and do the things they love.Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
10/11/24 • 27:18
Sara shares her story of being a blind nomad traveling throughout the USA, her passion for astrology, reiki, and self improvement.Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
8/30/24 • 35:38
Michael shares his experience growing up as a ham radio operator, studying physics at university, assisting with the development of Kurzweil's assistive tech devices, and escaping the twin towers on September 11th with his guide dog, Roselle.Apple Podcast: Unstoppable MindsetStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
8/9/24 • 34:19
Bonnie shares her experiences with guide dogs, moving to New Zealand, writing romance novels, and her love of horses, history, and culture.Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
7/15/24 • 25:48
Sam shares his experience developing The Blind Life YouTube channel, podcast, TikTok and social media presence. His family plays a central role in his life, and he gracefully walks the line between artist and techie as a cake decorator, comic book artist, and assitive technology trainer.YouTube: The Blind Life by Sam SeaveyStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
5/10/24 • 37:44
Hoby Wedler shares his experience building businesses as a successful entrepreneur in the Food & Beverage industry after earning his PhD in Chemistry. He was born blind with microphthalmia, and developed his palate and love for cooking through growing up in a family who supported him through high expectations. His curiosity and thirst for knowledge will hopefully pair well with your day and leave you feeling inspired.Apple Podcast: Heard and EmpoweredStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
4/26/24 • 45:16
Josh Schneider from The Dented Puck (podcast and foundation) shares his story about losing his vision in his 30s, rediscovering ice hockey as a blind player, and building a foundation and team to promote the sport he loves.Apple Podcast: The Dented PuckStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
3/30/24 • 41:52
This episode features Hoby Wedler interviewing Charlotte about the podcast and how it came to be.Send questions to storiesofvisionloss@gmail.comThank you for listeningHoby's podcast: https://heardandempowered.orgStay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
3/25/24 • 12:12
Jerry shares his experience through decades of participating in positive change and mending his San Francisco community through the Vietnam War, saving housing from the clear cutting of the landscape to remodeling an Edwardian house, and being on the front row of watching technology grow and shift through time. He now mentors people through art and woodworking, and his walking tour business called Jose Can You See. Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
2/23/24 • 37:05
Sheila shares her experience meeting her husband at World Services for the Blind while going through a training program to learn alternative techniques to function competitively with Optic Neuritis. She has an emotional support animal (ESA) and her husband has a guide dog (service animal).Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
2/9/24 • 29:14
David Steinmetz (Arizona Industries of the Blind) shares his experience adapting to RP while changing careers and raising a family.Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
1/26/24 • 19:58
Anne shares her experience as a published writer. She grew up with RP and CP, and she has some encouraging words to share with anyone who has had similar experiences.Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
12/8/23 • 23:49
Dr. Kirk Adams shares his experience building his career as a leader in the nonprofit space (American Foundation for the Blind, Seattle Lighthouse for the Blind, and Seattle Public Library) with his goal to accelerate accessibility and inclusion. He talks about his family traditions - for Thanksgiving and outdoors at the lake.Stay connected and share your story: storiesofvisionloss@gmail.comCheck out a list of our guests: www.storiesofvisionloss.com/guestsJoin Supporter's Club - $5/monthRecord an Audio Message!
11/21/23 • 31:31
