Show cover of In Sixteen Years of Endometriosis

In Sixteen Years of Endometriosis

Laugh, cry, and shout with us as we talk all things endometriosis. We’re 2 witty best friends that pride ourselves on sharing accurate, well-researched information. We delve into all those embarrassing did-that-really-just-happen?! endo stories, talk vulnerably about our personal growth, and share disease facts with a side of humor. We hope our podcast will support and empower you. —Important note on inclusive language: We hadn’t yet been educated about inclusive language when we began our podcast; but after learning, we used this language midway through the show and going forward.

Tracks

Ep97: Endometriosis Care – A Chat with Soha Wahb, founder of Endo In Arabic
Soha Wahb (she/her) is a Lebanese medical student at the American University of Beirut, and founder of “Endo In Arabic”, an initiative that aims to provide accurate information about Endometriosis in both English and Arabic, and to shed light on patients’ struggles and the factors hindering access to proper care. In this episode, Soha brings forth her perspectives of being both a patient and healthcare professional to talk about the difficulties of accessing expert care, such as how loosely the term endometriosis “specialist” is used, and the lack of set criteria and unwillingness among the general medical community to distinguish true optimal care from suboptimal care. We also had a thought provoking discussion about how the medical community in the region and worldwide needs to take initiative and responsibility in improving endometriosis care. This episode is a part of a short series I’m doing on endometriosis care and experiences globally. The problems with care, misinformation and lack of access to excision that the endometriosis community faces is a global problem, and I wanted to highlight the voices of a few advocates worldwide who are doing great work and who could speak on obstacles to care that they've come across and also report on obstacles to care that members of their respective regional support groups have experienced. Please keep in mind however that while they share their experiences and opinions, they don't speak for or represent all of the people in their country or region, just like when I speak about care I've encountered in the US, I'm not speaking for every person's experience in the US either. Many of our experiences are similar, but they are also each unique and individual to each of us and vary widely. All of the opinions expressed by the interviewees are their own.  CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears CONNECT WITH SOHA! INSTAGRAM: @endoinarabic https://www.instagram.com/endoinarabic/ YOUTUBE: https://www.youtube.com/channel/UCfWcwXxl0l3TYr2H3qZPB8g
88:07 09/22/2022
Ep96: The Psychological Toll of Medical Gaslighting
We talk about some common examples of medical gaslighting that we may have heard from our doctors, and delve into the psychological toll it can take on us. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears
74:40 09/08/2022
Ep95: What are Endometriosis Guidelines? Interview with Kate Boyce
There are various endometriosis guidelines worldwide which guide gynecologists in treating endometriosis and set the standard of care. Amy speaks with Kate Boyce (she/her), who is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself. We talk about what the guidelines are, who they are for, how they are formed and what data is used. The focus is on the ACOG guidelines but the ESHRE and Australia guidelines are briefly mentioned for some comparative purposes. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears CONNECT WITH KATE: INSTAGRAM: @endogirlsblog WEBSITE: https://endogirlblog.com/ SOURCES: Clickable links at insixteenyears.com/episode95 --ESHRE Guideline Endometriosis 2022 --RANZCOG Endometriosis clinical practice guideline --Excision of Endometriosis - CEC website --The Road Not Taken v. The Easy Path - CEC website --The Standard of Care is Not Sufficient! - CEC website --Kalaitzopoulos, D.R., Samartzis, N., Kolovos, G.N. et al. Treatment of endometriosis: a review with comparison of 8 guidelines. BMC Women's Health 21, 397 (2021). https://doi.org/10.1186/s12905-021-01545-5 --Ceccaroni M, Clarizia R, Mussi EA, Stepniewska AK, De Mitri P, Ceccarello M, Ruffo G, Bruni F, Rettore L, Surico D. "The Sword in the Stone": radical excision of deep infiltrating endometriosis with bowel shaving-a single-centre experience on 703 consecutive patients. Surg Endosc. 2022 May;36(5):3418-3431. doi: 10.1007/s00464-021-08663-z. Epub 2021 Jul 26. Erratum in: Surg Endosc. 2021 Oct 12;: PMID: 34312725.
73:23 08/24/2022
Ep94: The Medical vs Social Model of Disability. Part 2
We talk about the medical and the social model of disability, and our thoughts on how it applies to endometriosis and chronic illness in general. These 2 models, which we explained about in episode 93, are just 2 ways of many to look at disability. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee through our website. SOURCES: Clickable links at insixteenyears.com/episode94 --Chronic illness and Disability, intersection and separation - On "The Way We Roll" podcast --A Brief History of the Disability Rights Movement --Crip Camp - Documentary --Arthur A. Mirin. Gender Disparity in the Funding of Diseases by the U.S. National Institutes of Health. Journal of Women's Health. Jul 2021.956-963. http://doi.org/10.1089/jwh.2020.8682
62:33 07/28/2022
Ep93: The Medical vs Social Model of Disability. Part 1
Like all things in life, there are many perspectives and ways of looking at disability and the social, political, cultural, and economic factors that define it. Two of the main models are the social model and the medical model, which we have a general discussion about today. We will take a deeper dive into the 2 models and how we feel they relate to endometriosis in part 2. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode93 --Disability Impacts All of Us - from the CDC website --The Social Model of Disability - PDF download by Inclusion London --Models of Disability: Types and Definitions - by Disabled World --Social model of disability - by People with Disability Australia --What is Ableism - by Disability and Philanthropy Forum
33:49 07/16/2022
Ep92: Hormonal Medication Options for Endometriosis
In episode 91, we talked at length about how no hormonal medications actually treat the disease, in spite of this prevalent misinformation among the medical community. Excision is the gold standard treatment and the only one that can remove all endometriosis at the root. However, hormonal suppression may help us with our SYMPTOMS and allow some of us to have a better quality of life. In this episode, we talk about different types of hormones, such as combined hormonal contraceptives, progestins, and GnRh drugs. Many doctors will tell their patient that X drug is the only option available to try and manage symptoms, but this isn’t true. We discuss efficacy, side effects, and first line vs second line treatment. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode92 --Hormonal Medications - from Nancy's Nook --Donnez J, Dolmans MM. Endometriosis and Medical Therapy: From Progestogens to Progesterone Resistance to GnRH Antagonists: A Review. J Clin Med. 2021 Mar 5;10(5):1085. doi: 10.3390/jcm10051085. PMID: 33807739; PMCID: PMC7961981. --Resources on Lupron. --Resources on Orilissa.
69:05 07/01/2022
Ep91: What Can Hormonal Suppression Actually Do For Endometriosis?
Hormonal suppression - such as combined hormonal contraception, IUDs, progestins like Dienogest/Visanne, or GNRH analogs like Lupron, Orilissa, Zoladex , Synarel, Prostap, etc - MAY help SOME people with their endometriosis SYMPTOMS. However, no hormonal medications actually treat the disease, in spite of this prevalent misinformation among the medical community. We break down flawed methodology in 2 studies on Lupron and Zoladex, and talk about how hormones can’t clean up or remove endo. Endometriosis can still progress and recur while a person is taking hormones, and hormones can’t diagnose endo either. Hormonal suppression helps many of us in this community with our symptoms and may allow some of us to have a better quality of life. But hormones also have side effects, so it’s important to understand the limitations of hormonal suppression so that we can make an informed decision on what is best our individual situation. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode91 --Gheorghisan-Galateanu AA, Gheorghiu ML. Hormonal Therapy in Women of Reproductive Age with Endometriosis: An Update. Acta Endocrinol (Buchar). 2019;15(2):276-281. doi:10.4183/aeb.2019.276 --Donnez J, Dolmans MM. Endometriosis and Medical Therapy: From Progestogens to Progesterone Resistance to GnRH Antagonists: A Review. J Clin Med. 2021;10(5):1085. Published 2021 Mar 5. doi:10.3390/jcm10051085 --Evers JL. The second-look laparoscopy for evaluation of the result of medical treatment of endometriosis should not be performed during ovarian suppression. Fertil Steril. 1987 Mar;47(3):502-4. doi: 10.1016/s0015-0282(16)59062-1. PMID: 2951279. --Luprolide - the D is silent. 300 page report to the FDA on Lupron by Dr. David Redwine. --Zoladex: Does it really treat endometriosis? by Endogirlsblog --Shaw RW. An open randomized comparative study of the effect of goserelin depot and danazol in the treatment of endometriosis. Zoladex Endometriosis Study Team. Fertil Steril. 1992 Aug;58(2):265-72. doi: 10.1016/s0015-0282(16)55205-4. PMID: 1386029. --Medication to Prevent Recurrence? from Nancy's Nook. --THE BUSINESS OF BIRTH CONTROL - Documentary homepage.
91:07 06/18/2022
Ep90: Pelvic Floor Physical Therapy with Dr. Amy Stein
We welcome Dr. Amy Stein, a physical therapist at the forefront of treating pelvic floor dysfunction and pelvic pain. In addition to being the founder of Beyond Basics Physical Therapy in NYC, Dr. Stein has served as the President – and is currently on the advisory board – of the International Pelvic Pain Society. She is the co-author of Beating Endo: How to reclaim your life from Endometriosis and the author of Heal Pelvic Pain. Today we talk about what the pelvic floor is, what pelvic floor physical therapy is, how it can help patients with endometriosis, how to find a pelvic floor physical therapist, and more! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! Clickable links at insixteenyears.com/episode90 CONNECT WITH DR. STEIN: Beyond Basics Physical Therapy Wellness x nature Book: Heal Pelvic Pain Book: Beating Endo: How to Reclaim Your Life from Endometriosis PFT RESOURCES: Academy of Pelvic Health Physical Therapy International Pelvic Pain Society Herman & Wallace Pelvic Rehabilitation Institute
63:11 05/26/2022
Ep89: Endometriosis and Disability
We break down the definition of disability under the ADA or the Americans with Disabilities Act, as well as mention the WHO criteria. We also discuss dynamic as well as “invisible” or non-apparent disability. This is the first episode in a series we are doing on disability. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode89 Perspectives on the Meaning of “Disability”. AMA J Ethics. 2016;18(10):1025-1033. doi: 10.1001/journalofethics.2016.18.10.pfor2-1610. ADA National Network ADA-AA Definition of a Disability – Super helpful and has the examples we mentioned in the episode. My Disability Is Dynamic by Brianne Benness. Ask Jan, Sample forms – Here you can find links to the Sample Medical Inquiry Form in Response to an Accommodation Request (the form we went over in the episode) and more. Disability and Health Overview – WHO criteria found on the CDC website
68:23 05/12/2022
Ep88: It’s Okay If All You Did Today Was Survive
There are days when it feels like all we are doing is surviving. We talk about how we get through heavy feelings and how we try to stay open to possibility even on the most hopeless-feeling days. AMY'S BOOK: Finding Peace with a Devastating Disease by Amy Corfeli. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
68:37 04/28/2022
Ep87: Acceptance, DBT, and Endometriosis – A Chat with Maggie Bowyer. Part 2
Today we continue our chat on DBT (Dialectical Behavioral Therapy) with Maggie Bowyer (they/them), by talking about interpersonal skills - what we’ve learned and are each working on. Maggie is also the author of several poetry collections including When I Bleed: Poems about Endometriosis and Ungodly. INSTAGRAM: @maggie.writes TWITTER: maggiebow98 WEBSITE: www.maggiebowyer.com EMAIL: Bowyermag@gmail.com
29:54 04/15/2022
Ep86: Acceptance, DBT, and Endometriosis – A Chat with Maggie Bowyer. Part 1
Today we welcome Maggie Bowyer (they/them) to the show for a beautiful chat on acceptance and DBT. DBT stands for Dialectical Behavioral Therapy, which is a type of Cognitive Behavioral Therapy that teaches additional skills such as acceptance, mindfulness, interpersonal skills, emotional regulation, and distress tolerance skills. We talk about these skills in relation to endometriosis and how they’ve helped us to live with more intention, peace, and meaning in spite of the challenges this disease brings. Maggie is also the author of several poetry collections including When I Bleed: Poems about Endometriosis and Ungodly. INSTAGRAM: @maggie.writes TWITTER: maggiebow98 WEBSITE: www.maggiebowyer.com EMAIL: Bowyermag@gmail.com
64:12 04/01/2022
Ep85: Three Years Post Excision – Amy’s Update
It’s been 3.5 years since Amy had excision. She talks about what excision helped with and what she is still working on, as well as the lessons she took away post-excision about endo and overall healing. She also shares the advice she would give to her younger self. AMY'S BOOK: Finding Peace with a Devastating Disease, by Amy Corfeli. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
86:44 03/18/2022
Ep84: Excision Surgery for Endometriosis. Part 3
We finalize our excision series by speaking about how endometriosis rates of recurrence for excision vary throughout the literature, and some factors that can play a role into why there is such a difference in recurrence rates among studies. We also talk about fears we might have about endo recurrence, studies looking at quality of life increases post-excision, and access to excision. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode84 Why excision is recommended. Article from Nancy’s Nook. Cindy M. Mosbrucker MD, David B. Redwine MD. The Cost Effectiveness of Surgical Excision of Endometriosis: an unpublished study. Endometriosis Institute of Oregon. Gurkan Bozdag. Recurrence of Endometriosis: Risk Factors, Mechanisms and Biomarkers. Women’s Health, Volume: 11 issue: 5, page(s): 693-699. Article first published online: September 12, 2016; Issue published: September 1, 2015. https://doi.org/10.2217/whe.15.56 Francisco Carmona, Angeles Martínez-Zamora, Xavier González, Angeles Ginés, Laura Buñesch, Juan Balasch. Does the learning curve of conservative laparoscopic surgery in women with rectovaginal endometriosis impair the recurrence rate? Fertility and Sterility. Volume 92, ISSUE 3, P868-875, September 2009. DOI:https://doi.org/10.1016/j.fertnstert.2008.07.1738 N.M. Donnellan,I.R. Fulcher,N.B. Rindo. Self-Reported Pain and Quality of Life Following Laparoscopic Excision of Endometriosis as Measured Using the Endometriosis Health Profile-30: A 5 Year Follow-Up Study. Journal of Minimally Invasive Gynecology. November–December 2018. https://doi.org/10.1016/j.jmig.2018.09.089 Luigi Fedele, M.D., Stefano Bianchi, M.D., Giovanni Zanconato, M.D., Valentino Bergamini, M.D., Nicola Berlanda, M.D., Luca Carmignani, M.D. Long-term follow-up after conservative surgery for bladder endometriosis. Fertility and Sterility. Volume 83, ISSUE 6, P1729-1733, June 01, 2005. DOI:https://doi.org/10.1016/j.fertnstert.2004.12.047 Abbott JA, Hawe J, Clayton RD, Garry R. The effects and effectiveness of laparoscopic excision of endometriosis: a prospective study with 2-5 year follow-up. Hum Reprod. 2003 Sep;18(9):1922-7. doi: 10.1093/humrep/deg275. PMID: 12923150. Pain Relief after Excision of All Endometriosis. On Center for Endometriosis Care’s website.
74:31 03/03/2022
Ep83: Excision Surgery for Endometriosis. Part 2
As we continue our excision series, we talk about the difference between persistence vs recurrence and dive deeper into facts around excision. We also discuss how not all excision surgeons have the same skill level or experience, and why this matters. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode83 For resources for finding an excision surgeon, see my Endo Overview Treatment section: insixteenyears.com/treatment Extra Pelvic Not Rare and Indian Center for Endometriosis talk Extra Pelvic Endometriosis – Great info on bowel endo. Cutaneous/Skin Endometriosis – from ExtraPelvic Not Rare. What is the cure rate following excision of endometriosis? – By Dr. David Redwine. Was my surgery a failure? – By the CEC.
77:07 02/17/2022
Ep82: Interview with Excision Surgeon Dr. Vimee Bindra
We speak with Dr. Vimee Bindra, who is a leading endometriosis excision surgeon in India with a high volume practice in endometriosis. She deals with ovarian endometriosis along with ureter, bowel, bladder, and other extra-pelvic locations too. Dr. Bindra is an endometriosis excision surgeon at Apollo Hospitals in Hyderabad, India. She is also the director of the "Centre for PCOS and Endometriosis" (COPE Clinics). Additionally, she is an endometriosis educator and co-founder of the support group ”ENDOCRUSADERS” for people with endometriosis. In this episode, Dr. Bindra brings her experience as an excision surgeon to answer questions about excision, such as technique, the use of imaging pre-operatively, and surgery for endometriomas, bladder, and bowel endo. She also discusses the importance of having a multidisciplinary team and a patient-centered treatment approach. CONNECT WITH DR. BINDRA: (clickable links at insixteenyears.com/episode82 ) IG: @endometriosissurgeon_india FB group: Endo Crusaders  YouTube channel:Gynaec Facts  Website: www.drvimeebindra.com Twitter : Endometriosis Surgeon India @VimeeBindra  Linkedin https://www.linkedin.com/in/dr-vimee-bindra-basu-7514765b/ CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
90:07 02/03/2022
Ep81: Excision Surgery for Endometriosis. Part 1 – A Basic Overview
Excision surgery is the gold standard for endometriosis treatment. We explain the difference between ablation and excision surgery, as well as the advantages of excision. There are only about 200 excision surgeons in the US, and we discuss systemic problems within the medical system that contribute to this shortage. We briefly talk about robotic surgery as well as surgical lighting. For resources on finding an excision surgeon, see our website. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode81 For resources for finding an excision surgeon, see my Endo Overview Treatment section: insixteenyears.com/treatment Excision of Endometriosis – from the CEC, which includes the resources for the question we mentioned “My Doctor thinks excision & Endometriosis Treatment Centers are all hype and that the disease can be treated by anyone through basic Laparoscopy, drug suppression and down the road, hysterectomy. Do you have any references supporting the use of Excision?” Robotic Surgery – Article we referenced by Dr John Dulemba Endometriosis Appearance and Location: Impact on Surgical Success – From Nancy’s Nook Lier, M.C.I., Vlek, S.L., Ankersmit, M. et al. Comparison of enhanced laparoscopic imaging techniques in endometriosis surgery: a diagnostic accuracy study. Surg Endosc 34, 96–104 (2020). https://doi.org/10.1007/s00464-019-06736-8 Decoding Coding: What is the Best Way to Code for Endometriosis?
63:34 01/19/2022
Ep80: Exploring Our Beliefs Around Our Personal “Endometriosis Diet”
Many of us follow some kind of special way of eating to help reduce our endometriosis pain, fatigue, or flares. This could be an anti-inflammatory diet, the Paleo diet, the AIP, gluten-free, sugar-free, dairy-free, or any other diet. It often involves cutting out specific foods, and it can feel restrictive, limiting, or sad that we no longer eat the foods we love and are accustomed to. As two people each following what’s typically considered a restrictive diet, we talk about some of the limiting beliefs we had, and mindset shifts we made that have helped us to embrace the diets we’ve chosen. This helps us feel more empowered and motivated instead of deprived and resentful. (Important: Diet and lifestyle changes may help manage symptoms, but they cannot cure or treat endometriosis. Your endo can still progress even if you change your diet and no longer experience symptoms.) CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
88:16 01/05/2022
Ep79: Ordinary Courage
With endo and chronic illness, it can feel uncomfortable, vulnerable, or downright scary to ask for help, set boundaries, or do what we need to take care of ourselves in public situations (example: using a standing desk at the office or bringing our own meal to a catered event). We talk about the concept of ordinary courage that we have in our daily lives. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
46:36 12/23/2021
Ep78: What Does Endometriosis Look Like And Why Does It Matter?
The color of endometriosis is one of the most important factors for a surgeon to identify it, but unfortunately, many doctors haven’t been trained to recognize all the visual appearances of endo. Which means that an untrained gynecologist could miss endo during surgery, leading to misdiagnosis or leaving endo behind during surgery. We talk about the various appearances of endo as well as give information on the debate around microscopic endo. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode78 (2000) Martin, Dan. Laparoscopic Appearance of Endometriosis, Second Edition, 1990-2020, Resurge Press, Richmond, https://www.danmartinmd.com/files/coloratlas1990.pdf, accessed 5/2021 Albee Jr, R. B., Sinervo, K., & Fisher, D. T. (2008). Laparoscopic excision of lesions suggestive of endometriosis or otherwise atypical in appearance: relationship between visual findings and final histologic diagnosis. Journal of Minimally Invasive Gynecology, 15(1), 32-37. Retrieved from http://www.ncbi.nlm.nih.gov/m/pubmed/18262141/ Laparoscopic diagnosis of endometriosis – from Dr. Redwine’s research on endopaedia.info The visual appearance of endometriosis and its impact on our concepts of the disease – from Dr. Redwine’s research on endopaedia.info Age related evolution in color appearance of endometriosis – from Dr. Redwine’s research on endopaedia.info Invisible microscopic endometriosis – Is it invisible, or just not there? – from Dr. Redwine’s research on endopaedia.info Hopton, E N and David Byron Redwine. “Eyes wide shut: the illusory tale of ‘occult’ microscopic endometriosis.” Human reproduction 29 3 (2014): 384-7 Is There Microscopic or Occult Endometriosis – from Nancy’s Nook
71:44 12/08/2021
Ep77: Finding Meaning
We discuss finding meaning in our lives. What gives us meaning? Why is meaning important? How can we find more time for the things that give us joy? AMY'S BOOK: Finding Peace with a Devastating Disease, by Amy Corfeli. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
59:10 11/25/2021
Ep76: HRT – Hormone Replace Therapy
We discuss HRT, everything from what it is, the type of doctor you may see for HRT, hormone testing, to how you take it (oral, pellet, patch, etc). We also discuss the studies on the safety of HRT. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode76 Lara Briden – The Period Revolutionary – Great website on hormones from naturopath doctor and bestselling author Lara Briden. I highly recommend her books Period Repair Manual and Hormone Repair Manual. How Birth Control Switches Off Hormones and Why That Matters – Article by naturopath doctor Lara Briden. Guide to Using Progesterone for Women’s Health – Article by naturopath doctor Lara Briden. Does taking progesterone (alone or with estrogen) increase women’s risk for breast cancer? – Article from The Center for Menstrual Cycle and Ovulation Research. Beyond the Pill: A 30-Day Program to Balance Your Hormones, Reclaim Your Body, and Reverse the Dangerous Side Effects of the Birth Control Pill by Dr Jolene Brighten. When Is the Best Time to Test Hormone Levels? – Article by Dr. Jolene Brighten. Dutch Test – Info from their website. Cagnacci A, Venier M. The Controversial History of Hormone Replacement Therapy. Medicina (Kaunas). 2019;55(9):602. Published 2019 Sep 18. doi:10.3390/medicina55090602 Holtorf K. The bioidentical hormone debate: are bioidentical hormones (estradiol, estriol, and progesterone) safer or more efficacious than commonly used synthetic versions in hormone replacement therapy? Postgrad Med. 2009 Jan;121(1):73-85. doi: 10.3810/pgm.2009.01.1949. PMID: 19179815. Moskowitz D. A comprehensive review of the safety and efficacy of bioidentical hormones for the management of menopause and related health risks. Altern Med Rev. 2006 Sep;11(3):208-23. PMID: 17217322. Bioidentical Hormones, Acne Scars, and Heavy Metal Toxins – From Dr Chris Kresser. RHR: The Right and Wrong Way to Treat Hormone Imbalance – From Dr Chris Kresser.
71:35 11/11/2021
Ep75: Perimenopause, Menopause, and Progesterone
We talk about the life transition from having regular cycles to going through perimenopause to being in menopause. We discuss what perimenopause is, how we may know if we are in it, what symptoms we may have during this time, and the potential benefits progesterone can have. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SOURCES: Clickable links at insixteenyears.com/episode75 Lara Briden – The Period Revolutionary – Great website on hormones from naturopathic doctor and bestselling author Lara Briden. I highly recommend her books Period Repair Manual and Hormone Repair Manual. Why Perimenopause Is Not About Aging – Article from naturopathic doctor Lara Briden. Rescue Prescription for Menopause and Perimenopause – Article from naturopathic doctor Lara Briden. Guide to Using Progesterone for Women’s Health – Article from naturopathic doctor Lara Briden. Help for Hormonal Sleep Problems – Article from naturopathic doctor Lara Briden. Why Progesterone Is Both Good and Bad for Mood (and How to Treat PMDD) – Article from naturopathic doctor Lara Briden. Estrogen Tutorial – From the Dutch test website Hysterectomy: Considerations – From the NHS website
72:38 10/28/2021
Ep74: Thoracic Endometriosis with Wendy Bingham DPT, Founder of ExtraPelvic Not Rare
We are back with Wendy Bingham DPT, founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics, and appropriate treatment referrals. In this episode, we speak about thoracic endometriosis: what it is, the symptoms, the treatment, how it’s diagnosed and more. Wendy also tells us her vision for the future of endo treatment. WENDY'S WEBSITE: extrapelvicnotrare.org WENDY'S INSTAGRAM: @extrapelvicnotrare WENDY'S FB GROUP: ExtraPelvic Not Rare Endo Support and Education Group LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com
48:46 10/14/2021
Ep73: Exploring the Idea of Happiness
CW: Brief mention of suicidal ideation. // What is happiness? Is it possible to have while living with endo and other chronic illnesses? If so, how can we find it? We explore the idea that happiness is a skill that can be learned and share our experiences trying to find happiness anyways in spite of the many challenges that living with endo brings. AMY'S BOOK: Finding Peace with a Devastating Disease, by Amy Corfeli. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
78:31 09/30/2021
Ep72: The Importance of Inclusivity in the Endo Community – Interview with Bee Lynn
CW: Removal of the uterus, hysterectomy and what that means for pregnancy and for us as a person, body dysphoria, invasive medical procedures, discrimination, trauma. // We speak with Bee Lynn on the topic of why inclusion and representation are important within the endometriosis community. Bee (they/them) is a patient advocate as well as social activist. They are the creator of the Mean Patient Advocate, and a co-founder of the Endo Crisis Connection, which is a nonprofit dedicated to supporting people with endometriosis through the difficulties of living with this disease. Bee identifies as nonbinary and one of their missions is to make the endometriosis advocacy space more inclusive and welcome to all. CONNECT WITH BEE! INSTAGRAM AND TIKTOK: @BeeLynnNYC CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
47:28 09/16/2021
Ep71: Hormones 101. Part 3
In our final episode on the basics of hormone health, we talk about some common supplements that may help support hormone health, the importance of sleep and healthy fats, and progesterone and anovulatory cycles. LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com SOURCES: Clickable links at insixteenyears.com/episode71 Roadmap to Progesterone – Article by naturopathic doctor Lara Briden Reasons You Might Have Low Progesterone – Article by naturopathic doctor Jolene Brighten Ovulation Is the Main Event of the Menstrual Cycle – Article by naturopathic doctor Lara Briden L-Theanine Benefits: Better Sleep and Less Stress – Article by naturopathic doctor Jolene Brighten 8 Ways Magnesium Rescues Hormones – Article by naturopathic doctor Lara Briden Why Zinc Is One of My Favorite Supplements for Women’s Health – Article by naturopathic doctor Lara Briden
49:27 09/01/2021
Ep70: Hormones 101. Part 2
Continuing our talk on hormones from the previous episode, we talk about how stress, gut health, and exercise habits can affect our hormones. LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com SOURCES: Clickable links at insixteenyears.com/episode70 Lara Briden – The Period Revolutionary – Great website on hormones from naturopathic doctor and bestselling author Lara Briden. Her books are Period Repair Manual and Hormone Repair Manual. Dr Jolene Brighten – Great website on hormones from Dr Brighten, who is a Functional Medicine Naturopathic Physician and author of the book Beyond the Pill – A 30-Day Program to Balance Your Hormones, Reclaim Your Body, and Reverse the Dangerous Side Effects of the Birth Control Pill. If you are on hormonal birth control, this is a helpful book. How to Fix Your Period without Birth Control – Article from functional medicine doctor Chris Kresser. RHR: The Right and Wrong Way to Treat Hormone Imbalance – Article from functional medicine doctor Chris Kresser.
53:39 08/19/2021
Ep69: Hormones 101. Part 1
This will be a 3 part series on hormones, with a 2 part series on HRT after that. In this episode, we talk about how we may find ourselves in the hormone jungle (or tundra!) and the role hormones play in various bodily functions. We go over the basics of steroid and nonsteroid hormones. We explain about the importance of ovulation in relation to progesterone and overall health, and explains ways to know if you are ovulating. LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com SOURCES: Clickable links at insixteenyears.com/episode69 Menstruation in Girls and Adolescents: Using the Menstrual Cycle as a Vital Sign – from ACOG website Lara Briden – The Period Revolutionary – Great website on hormones from naturopathic doctor and bestselling author Lara Briden. Her books are Period Repair Manual and Hormone Repair Manual. Dr Jolene Brighten – Great website on hormones from Dr Brighten, who is a Functional Medicine Naturopathic Physician and author of the book Beyond the Pill – A 30-Day Program to Balance Your Hormones, Reclaim Your Body, and Reverse the Dangerous Side Effects of the Birth Control Pill. If you are on hormonal birth control, this is a helpful book.
69:13 08/04/2021
Ep68: Endometriosis Interview with Dr. David Redwine, World-Renowned Excision Surgeon. Part 2
Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and physicians alike. He has presented his theory of origin of endo, Mulleriosis, around the world. Today we discuss endometriosis treatments, excision surgery, and endometriosis recurrence. This is part 2 of 2. LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com
47:00 07/22/2021